|International Support Groups
The following support groups have been established to aid parents and family
members in dealing with and learning about the many facets of caring for a
person affected with Velo-Cardio-Facial Syndrome. They are educational and
supportive in nature and are NOT medical service providers, nor do they give
medical advice or opinion. Medical advice should be obtained ONLY from a
competent medical professional. If the coordinator of your support group does
not have knowledge of competent medical professionals in your area who are
familiar with VCFS, please contact the
Foundation Office and we will attempt to direct you, if possible, to someone
in your area.
Support Group information is updated as often as possible. If you don't find
your area listed, please contact the
Foundation Office or check again in a few days.
Select a represented country for it's support group information.
Asociación Argentina Familias 22q11.2DS
Mr. Jorge E. Severio, Secretario General
Fundación de Endocrinología Infantil
Gral. Lucio N. Mansilla 2771
Capital Federal (C1425BPE)
Buenos Aires, Argentina
Phone: 54 - 911 - 5001 - 9497
Fax: 54 - 11 - 4371 - 9689
Web site: http://www.vcfs.com.ar/
Website: http://www.eitan-rd.co.il/ (in Hebrew)
"The Israel Association of Rare Diseases"
The Velo-Cardio- Facial Syndrome Education Foundation of Jamaica/ Caribbean
Association 22q11 Mexico
Valladolid, Yucatan, Mexico.
- Max Appeal
15 Meriden Avenue
Helpline: +44 (0) 1384821227
Tollfree (within UK): 0800 389 1049
If no support group is listed for your area or region, please look to a
neighboring area, if possible.
If you or your organization would like to be listed as someone who may be
contacted regarding VCFS, please email us with the precise contact information which you authorize to be placed on the web