| VCFSEF Support Groups & Contacts in the United States
The support groups listed were established to aid parents & family members in learning about and dealing with and the many facets of caring for a person with Velo-Cardio-Facial Syndrome. The groups are educational and supportive in nature ONLY. They are NOT medical service providers, nor do they provide medical advice or opinion. Medical advice should be obtained ONLY from a qualified medical professional.
If the support group or person you choose does not have knowledge of
qualified medical professionals in your area who are familiar with VCFS, please contact the Foundation Office and
we will attempt to assist you. Support Group information is updated regularly.
If you do not find a support group near you, please contact the Foundation Office and will try
to locate a contact.
** Not every state is represented.
Alabama
- Valerie Bonds
4498 Village Green Drive
Birmingham, AL 35242
(205) 991-6744
Email: ABonds@aol.com
Alaska
- Amy Paff
23715 Chandelle Dr
Chugiak, AK 99567
Phone: (907)227-1404
Email: amypaff@mac.com
Arizona
- Jennifer Rockrich
8821 N. 9th Ave.
Phoenix, AZ 85021
602-944-2832 home
602-908-7100 cell
JRockrich@msn.com
- Sherry Gomez
Glendale, AZ 85306
(602) 789-6416
Email: 22q11@cox.net
California
Colorado
Connecticut
- Northeast VCFS Support Group
Lisa Jennings
385 North Street
Weymouth, MA 02191
Phone: 781-335-6652
E-mail: lisamjenn@aol.com
-
Kirsten Montgomery
62C Patricia Avenue
North Stonington, CT 06359
Phone: 860-204-9391
E-mail: kirsten-dennis@sbcglobal.net
Florida
Georgia
Idaho
Illinois
Indiana
Iowa
- IOWA VCFS/DIGEORGE SUPPORT GROUP
Jennifer Kokjohn
A306 Boone Street
Boone, IA 50036
Phone: 515-432-0915
Email: kokjohn@galynx.com
- Kerry Schadl
Dubuque, Iowa
Email: kschadl@aol.com
Kansas
- Trisha Slimmer
5145 NW Arroya Dr.
Topeka, KS 66618
Phone: 785-286-3875
Email: trslimmer@cox.net
Kentucky
Louisiana
- Louisiana 22q/VCFS Support Network
Joy McClellan
261 Elmeer Avenue
Metairie, LA 70005
(504) 250-1916
22q11la@gmail.com
Support group meeting held every other month
Maine
Maryland
Massachusetts
- Northeast VCFS Support Group
Lisa Jennings
385 North Street
Weymouth, MA 02191
Phone: 781-335-6652
E-mail: lisamjenn@aol.com
Michigan
Minnesota
- Minnesota VCFS Support Group
Anna Thurmaes
Minneapolis, MN
Phone: (612) 626-3478
Email: thur0080@umn.edu
Mississipi
Missouri
Montana
- Raedene Wipf
484 Hwy10 E. #1
Big Timber, MT 59011
Phone: 406-932-4182
Email: wipf484@gmail.com
Nebraska
- MISSION 22q
(formerly
Nebraska 22q Family Support Group)
Anne Stalker
815 West Beal Street
Lincoln, NE 68521
Phone: (402) 435-0221
E-mail: astalker2@unl.edu
Website: mission22q.com
Nevada
New Hampshire
- Northeast VCFS Support Group
Lisa Jennings
385 North Street
Weymouth, MA 02191
Phone: 781-335-6652
E-mail: lisamjenn@aol.com
New Jersey
New Mexico
New York
North Carolina
Ohio
Oklahoma
- Laura Ross
1312 Cherry Avenue
Lawton, OK 73507
Phone: 405-353-6446
E-mail: rross27719@aol.com
Oregon
Pennsylvania
Rhode Island
- Joy Chece
13 Pat Drive
Lincoln, RI 02865
Phone: 401-334-4632
Email: pchece@cox.net
South Carolina
South Dakota
- We're sorry. No known support groups in South Dakota.
If you wish to start a support group or serve as a contact for your area, please notify the Foundation at info@vcfsef.org or contact your Regional Director.
Tennessee
Texas & Arkansas
Austin/Central Texas area
Dallas area
East Texas / Houston area
En Español
Utah
- Bridging the Gap"; 22q and "U"tah
Amy Steadman
West Jordan, Utah
Phone: 801-897-2189
Email: cammcs5@aol.com
Vermont
- Northeast VCFS Support Group
Maureen Anderson
2 Lansing Drive
Salem, NH 03079
Phone: 603-898-6332
E-mail: mladja@aol.com
Virginia
- Northern Virginia/DC Support Group
Nancy Robbins
11722 Saddle Crescent Circle
Oakton, VA 22124
Phone: 703-620-4178
Email: nirobbins@aol.com
Washington State
Wisconsin
-
If no support group is listed for your state or area, please look to a
neighboring state or area for possible assistance.
-
If you would like to be listed as someone who may be contacted regarding
VCFS, please email us with the precise
contact information which you authorize to be placed on the web site.
- If you are interested in starting a support group in your area where
none currently exists, please contact The
Foundation Office and we will provide you with information regarding how
start a support group.
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