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2012 Newsletters
September 2012 – English – En Espano
Highlights from the VCFSEF 19th Annual International Scientific Meeting and more.
June 2012 – English – En Espano
April 2012 – English – En Espanol
This newsletter previews the upcoming VCFSEF 19th Annual International Scientific Meeting in Toronto, recaps the 2nd Annual “Walk for Awareness” and more!
January 2012 – English – En Espanol
The theme of this newsletter is “Prevention”. Articles cover a wide range of topics from preventing tooth decay to anxiety. One of the best ways to prevent a potential problem is to be informed.
2011 Newsletters
October 2011 – English – En Espanol – French
Highlights from the VCFSEF 18th Annual International Scientific Meeting.
April 2011 – English – En Espanol
This newsletter spotlights Family Matters. In this issue, you will meet a little girl with VCFS who is an inspiration, read about a mother and her adult daughter who was recently diagnosed with VCFS, meet a college-age sibling and the lessons she has learned from her younger brother with VCFS, and more.
January 2011 – En Espanol – French
Effects of disrupted sleep, Frequently Asked Questions regarding issues related to
one infant’s feeding difficulties, and more.
2010 Newsletters
October 2010 – En Espanol
Highlights from the VCFSEF 17th Annual International Scientific Meeting.
July 2010 – En Espanol
Information and updates on the VCFSEF 17th Annual International Scientific Meeting.
March 2010 – En Espanol
The theme of this newsletter is “Transitioning to Adulthood”. It also features updates on the VCFSEF 17th Annual International Scientific Meeting, Global Forum, FAQs, regional updates, and more.
January 2010 – En Espanol
Highlights from the 16th Annual Scientific Meeting in Rome, Italy. Meet the board
and regional directors, FAQs, regional updates, and more.
2007 Newsletters
November 2007 – En Espanol
More frequently asked questions, a personal challenge, regional updates. Meet the new board of directors, a global forum and highlights from the 14th Annual Scientific Meeting, held in July…and more.
June 2007 – En Espanol
This month’s newsletter features all available details for the upcoming 14th International Scientific Meeting in Dallas, as well as more Rays of Hope highlighting positive accomplishments of children with VCFS, regional updates, a list of recent publications and more…
February 2007 – En espanol
14 pages of information ! More “Rays of Hope” success stories, FAQs, a great article on medical research ethics and a global community forum on ADHD, and MORE!
2006 Newsletters
June 2006 (size 826 KB)
22 pages of information. Includes “Rays of Hope” success stories about kids with VCFS, updates from International Networks around the world, details of the Benefit of Life Fund Raiser held in March, more “frequently asked questions” answered, full details and agenda for the Strasbourg conference and more!
February 2006 (size 825 KB)
23 pages: Living with VCFS, Siblings of Children w/Special Needs, Genetic Risk Factors, Research Updates, 2006 Conference Info, frequently asked questions, and more!
2005 Newsletters
June 2005 (Size 551KB)
Updates on the 11th Annual meeting in Syracuse, and the Strasbourg and Australia meetings. Articles on ADDHD, psychiatric risk behaviors, immunologic findings, summary of a new book, and more…
January 2005 Newsletter
Recaps of 2004 Atlanta Conference, article on The Art of Negotiating: Dealing with Problem Efficiently!, a touching article by VCFS mom Mary McPherson; introduction of your new board members and regional directors, and more. Also translated in Hebrew.
2004 Newsletters
January 2004 Newsletter
Greetings and farewells from Dr. Kushner and Dr. Shprintzen; summary of the 9th Annual Meeting in San Diego, *great* article on support groups by Maureen Anderson, and information on the new structure of The Educational Foundation.
Also translated in Arabic, Hebrew, and Spanish
2002 Newsletters
December 2002 Newsletter
Preliminary info on the 2003 Conference in San Diego , VCFS success story, 3rd in the 3-part series on speech problems entitled “Language Impairments and School Success”, an article entitled “How Does Brain Anatomy Affect Learning in Children with VCFS”, by Wendy Kates, Ph.D.; “VCFS Meetings Around the World”, and more.
2001 Newsletters
December 2001 Newsletter
Includes information on 2002 annual conference in Northampton ENGLAND. Also contains a VCFS Mother’s Story on dealing with VCFS, and a companion story by her son, a college student, discussing his perspective in dealing with VCFS. Also a very informative article on addressing speech and languages problems for VCFS children ages 3 through 6.
May 2001
Features two articles on child advocacy and education, and the first of a 3-part series discussing addressing speech language problems in VCFS children.
2000 Newsletters
December 2000
Includes information regarding the 2001 VCFSEF Annual Conference in Deerfield Beach, Fl, and an article on the purpose and mission of the Educational Foundation.
April 2000
Includes information regarding the Year 2000 VCFSEF Conference in Baltimore, Maryland including a “Call for Abstracts” form. Also contains a summary of the 1999 meeting in Milwaukee. Start of a “frequently asked questions” column, and a list of the new (and returning) council members (Note: To enhance loading speed, this web version does not incorporate the photos included in the hardcopy version.)
1999 Newsletters
November 1999
Posted 11/3/99, includes information regarding the Year 2000 VCFSEF Conference in Baltimore, Maryland including a “Call for Abstracts” form. Also contains a summary of the 1999 meeting in Milwaukee. Start of a “frequently asked questions” column, and a list of the new (and returning) council members (Note: To enhance loading speed, this web version does not incorporate the photos included in the hardcopy version.)
May 1999
General information regarding upcoming 5th Annual conference in Milwaukee, WI. Contains a recap of the June 1998 meeting in Boston and the essence of “The Great Debate: To Sign or Not to Sign.” Pros and cons of teach VCFS children to use signing as a means of communication. Also contains an announcement for the 5th Annual Conference in Milwaukee for 1999 (including a call for abstracts), membership/dues forms, order forms for the tape set from the 1998 Boston conference; minutes from the June meeting, and various other announcements.
1998 Newsletters
November 1998
Contains a recap of the June 1998 meeting in Boston and the essence of “The Great Debate: To Sign or Not to Sign.” Pros and cons of teach VCFS children to use signing as a means of communication. Also contains an announcement for the 5th Annual Conference in Milwaukee for 1999 (including a call for abstracts), membership/dues forms, order forms for the tape set from the 1998 Boston conference; minutes from the June meeting, and various other announcements.