VCFS Newsletters

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October 2014
10/12/2014
May 2014
05/22/2014
January 2014
01/16/2014
October 2013
10/12/2013
September 2012
09/01/2012

Highlights from the VCFSEF 19th Annual International Scientific Meeting and more.

June 2012
06/01/2012
April 2012
04/01/2012

This newsletter previews the upcoming VCFSEF 19th Annual International Scientific Meeting in Toronto, recaps the 2nd Annual "Walk for Awareness" and more!

January 2012
01/01/2012

The theme of this newsletter is “Prevention”. Articles cover a wide range of topics from preventing tooth decay to anxiety. One of the best ways to prevent a potential problem is to be informed.

October 2011
10/01/2011

Highlights from the VCFSEF 18th Annual International Scientific Meeting.

April 2011
04/01/2011

This newsletter spotlights Family Matters. In this issue, you will meet a little girl with VCFS who is an inspiration, read about a mother and her adult daughter who was recently diagnosed with VCFS, meet a college-age sibling and the lessons she has learned from her younger brother with VCFS, and more.

January 2011
01/01/2011

Effects of disrupted sleep, Frequently Asked Questions regarding issues related to one infant’s feeding difficulties, and more.

October 2010
10/01/2010

Highlights from the VCFSEF 17th Annual International Scientific Meeting.

July 2010
07/01/2010

Information and updates on the VCFSEF 17th Annual International Scientific Meeting.

March 2010
03/01/2010

The theme of this newsletter is “Transitioning to Adulthood”. It also features updates on the VCFSEF 17th Annual International Scientific Meeting, Global Forum, FAQs, regional updates, and more.

January 2010
01/01/2010

Highlights from the 16th Annual Scientific Meeting in Rome, Italy. Meet the board and regional directors, FAQs, regional updates, and more.

November 2007
11/01/2007

More frequently asked questions, a personal challenge, regional updates. Meet the new board of directors, a global forum and highlights from the 14th Annual Scientific Meeting, held in July...and more.

June 2007
06/01/2007

This month's newsletter features all available details for the upcoming 14th International Scientific Meeting in Dallas, as well as more Rays of Hope highlighting positive accomplishments of children with VCFS, regional updates, a list of recent publications and more...

February 2007
02/01/2007

14 pages of information ! More "Rays of Hope" success stories, FAQs, a great article on medical research ethics and a global community forum on ADHD, and MORE!

June 2006
06/01/2006

22 pages of information. Includes "Rays of Hope" success stories about kids with VCFS, updates from International Networks around the world, details of the Benefit of Life Fund Raiser held in March, more "frequently asked questions" answered, full details and agenda for the Strasbourg conference and more!

February 2006
02/01/2006

23 pages: Living with VCFS, Siblings of Children w/Special Needs, Genetic Risk Factors, Research Updates, 2006 Conference Info, frequently asked questions, and more!

June 2005
06/01/2005

Updates on the 11th Annual meeting in Syracuse, and the Strasbourg and Australia meetings. Articles on ADDHD, psychiatric risk behaviors, immunologic findings, summary of a new book, and more...

January 2005
01/01/2005

Recaps of 2004 Atlanta Conference, article on The Art of Negotiating: Dealing with Problem Efficiently!, a touching article by VCFS mom Mary McPherson; introduction of your new board members and regional directors, and more. Also translated in Hebrew.

January 2004
01/01/2004

Greetings and farewells from Dr. Kushner and Dr. Shprintzen; summary of the 9th Annual Meeting in San Diego, *great* article on support groups by Maureen Anderson, and information on the new structure of The Educational Foundation.
Also translated in Arabic, Hebrew, and Spanish

December 2002
12/01/2002

Preliminary info on the 2003 Conference in San Diego , VCFS success story, 3rd in the 3-part series on speech problems entitled "Language Impairments and School Success", an article entitled "How Does Brain Anatomy Affect Learning in Children with VCFS", by Wendy Kates, Ph.D.; "VCFS Meetings Around the World", and more.

December 2001
12/01/2001

Includes information on 2002 annual conference in Northampton ENGLAND. Also contains a VCFS Mother's Story on dealing with VCFS, and a companion story by her son, a college student, discussing his perspective in dealing with VCFS. Also a very informative article on addressing speech and languages problems for VCFS children ages 3 through 6.

May 2001
05/01/2001

Features two articles on child advocacy and education, and the first of a 3-part series discussing addressing speech language problems in VCFS children.

December 2000
12/01/2000

Includes information regarding the 2001 VCFSEF Annual Conference in Deerfield Beach, Fl, and an article on the purpose and mission of the Educational Foundation.

April 2000
04/01/2000

Includes information regarding the Year 2000 VCFSEF Conference in Baltimore, Maryland including a "Call for Abstracts" form. Also contains a summary of the 1999 meeting in Milwaukee. Start of a "frequently asked questions" column, and a list of the new (and returning) council members (Note: To enhance loading speed, this web version does not incorporate the photos included in the hardcopy version.)

November 1999
11/01/1999

Posted 11/3/99, includes information regarding the Year 2000 VCFSEF Conference in Baltimore, Maryland including a "Call for Abstracts" form. Also contains a summary of the 1999 meeting in Milwaukee. Start of a "frequently asked questions" column, and a list of the new (and returning) council members (Note: To enhance loading speed, this web version does not incorporate the photos included in the hardcopy version.)

May 1999
05/01/1999

General information regarding upcoming 5th Annual conference in Milwaukee, WI. Contains a recap of the June 1998 meeting in Boston and the essence of "The Great Debate: To Sign or Not to Sign." Pros and cons of teach VCFS children to use signing as a means of communication. Also contains an announcement for the 5th Annual Conference in Milwaukee for 1999 (including a call for abstracts), membership/dues forms, order forms for the tape set from the 1998 Boston conference; minutes from the June meeting, and various other announcements.

November 1998
11/01/1988

Contains a recap of the June 1998 meeting in Boston and the essence of "The Great Debate: To Sign or Not to Sign." Pros and cons of teach VCFS children to use signing as a means of communication. Also contains an announcement for the 5th Annual Conference in Milwaukee for 1999 (including a call for abstracts), membership/dues forms, order forms for the tape set from the 1998 Boston conference; minutes from the June meeting, and various other announcements.