Our Mission

Our Mission

The Velo-Cardio-Facial Syndrome Educational Foundation, Inc. is an organization comprised of both professional and lay people whose purpose is to educate the public, the scientific community, families of individuals with Velo-Cardio-Facial syndrome, and individuals with Velo-Cardio-Facial syndrome (VCF) about this common genetic disorder.

  • The Foundation will act as an advocate for both patients with VCF and the professional community treating this disorder.

  • The Foundation will provide a forum for the advancement of knowledge relevant to the diagnosis and treatment of individuals with VCF.

  • The Foundation will provide a forum for discussion of the problems, treatments, or achievements associated with VCF and its management.

The Foundation is organized divisionally into a number of continental groups, with directors for each part of the world represented on the Foundation’s board. These divisions are:


Asia and Africa

Nagato Natsume, DDS, MedSci, Ph.D.

[email protected]

Australia and New Zealand

Linda Campbell, Ph.D.

[email protected]


Professor Stephan Eliez, MD  and Bronwyn Glaser, Ph.D.

[email protected]org

Latin America

Antonio Ysunza, MD, Sc.D.

[email protected]

Middle East

Doron Gothelf, MD

[email protected]

United States and Canada

Dianne Altuna, MS/CCC-SLP

[email protected]