Our Mission

The Velo-Cardio-Facial Syndrome Educational Foundation, Inc. is an organization comprised of both professional and lay people whose purpose is to educate the public, the scientific community, families of individuals with Velo-Cardio-Facial syndrome, and individuals with Velo-Cardio-Facial syndrome (VCF) about this common genetic disorder.

  • The Foundation will act as an advocate for both patients with VCF and the professional community treating this disorder.
  • The Foundation will provide a forum for the advancement of knowledge relevant to the diagnosis and treatment of individuals with VCF.
  • The Foundation will provide a forum for discussion of the problems, treatments, or achievements associated with VCF and its management.

The Foundation is organized divisionally into a number of continental groups, with directors for each part of the world represented on the Foundation's board. These divisions are:

 

Asia and Africa
Nagato Natsume, DDS, MedSci, Ph.D.
[email protected]
Australia and New Zealand
Linda Campbell, Ph.D.
[email protected]
Europe
Professor Stephan Eliez, MD  and Bronwyn Glaser, Ph.D.
[email protected]org
Latin America
Antonio Ysunza, MD, Sc.D.
[email protected]
Middle East
Doron Gothelf, MD
[email protected]
United States and Canada
Dianne Altuna, MS/CCC-SLP
[email protected]