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Velo-Cardio-Facial Syndrome
Educational Foundation, Inc.

VCFSEF Support Groups & Contacts in the United States

The support groups listed were established to aid parents & family members in learning about and dealing with and the many facets of caring for a person with Velo-Cardio-Facial Syndrome.  The groups are educational and supportive in nature ONLY.   They are NOT medical service providers, nor do they provide medical advice or opinion. Medical advice should be obtained ONLY from a qualified medical professional.

If the support group or person you choose does not have knowledge of qualified medical professionals in your area who are familiar with VCFS, please contact the Foundation Office and we will attempt to assist you. Support Group information is updated regularly. If you do not find a support group near you, please contact the Foundation Office and will try to locate a contact.

States: **
AL  AR  AZ  CA  CO  CT  FL  GA  IA  ID IL IN  KS KY  LA MA  MD  ME  MD  MI  MN  MO  MT  NC  NE  NH  NJ  NM NY  OH  OK  OR  PA  RI  SC  SD  TX  UT  VA  VT  WA  WI

** NOT ALL STATES ARE REPRESENTED.


 

Alabama

  • Valerie Bonds
    4498 Village Green Drive
    Birmingham, AL 35242
    (205) 991-6744
    Email: [email protected]

Arizona


California

  • Northern California VCFS Support Group
    Lucy Brock
    Redwood City, CA
    Phone:650-365-8755
    E-mail: [email protected]

  • Linda Dempster
    77135 Michigan Drive
    Palm Desert, CA 92201
    Phone 760-772-5556
    Email: [email protected]

  • Northern California VCFS Support Group
    Cheryl Fox Dultz

    Kingswood Elementary School
    5700 Primrose Drive
    Citrus Heights, Ca 95610
    Phone: (916) 867-2046
    Email: [email protected] or [email protected]

  • Northern California VCFS Support Group
    Carrie Heran

    Phone: 916-624-1711
    Email: [email protected]

  • Patricia Lindsey
    Chico, California
    Phone: 530-892-8782
    Email: [email protected] 

  • Southern California VCFS Support Network
    Pam Hunter

    Email:  [email protected]
     


Colorado

  • We're sorry.  No known support groups in Colorado. 
    If you wish to start or function as a support group in Colorado, please notify the foundation at:  [email protected]

Connecticut

  • Northeast VCFS Support Group
    Maureen Anderson
    (supports Connecticut also)
    2 Lansing Drive
    Salem, NH 03079
    Phone: 603-898-6332
    E-mail: [email protected] 

Florida

  • Barbara Dandron
    613 NW 43 Way
    Deerfield Beach, FL 33442
    Phone: 954-418-0188
    Email: [email protected] 

  • Cynthia Leehe Dessert
    657 Heatherbrite Circle
    Apopka, FL 32712 ( near Orlando )
    Phone: 407-889-0228
    Email: [email protected] 

  • Barb Southwick
    780 Grand Rapids Blvd
    Naples, FL 34120
    Phone: 239-304-4491
    Email: [email protected] 
     

  • Lori Binko
    Tampa/St. Petersburg
    Phone: (727) 736-6437
    Email:  [email protected]


Georgia

  • Christy Felix
    220 Pendleton Drive
    Athens, GA 30606
    Phone: 706-543-3300
    Email: [email protected]

  • Karlene Coleman, MN, CGC
    Children's Healthcare of Atlanta
    1405 Clifton Road, NE
    Atlanta, GA 30322-1101
    Phone: 404-325-6641
    Email: [email protected] 

  • Lorraine Echols-Stewart
    1906 Ward Circle #4
    East Point, GA  30344-1514
    Email:  [email protected]

     

  • Latise Miller
    726 Jackson Circle
    Powder Springs, GA 30127
    Phone:  (770) 919-9510

    [email protected]


Idaho


Illinois


Indiana

  • We're sorry.  No known support groups in Indiana.
    If you wish to start or function as a support group in Indiana, please notify the foundation at:  [email protected]

Iowa

  • IOWA VCFS/DIGEORGE SUPPORT GROUP
    Jennifer Kokjohn
    A306 Boone Street
    Boone, IA 50036
    Phone: 515-432-0915
    Email: [email protected] 
     
  • Kerry Schadl
    Dubuque, Iowa
    Email: [email protected]

Kansas

  • Trisha Slimmer
    5145 NW Arroya Dr.
    Topeka, KS 66618
    Phone: 785-286-3875
    Email: [email protected] 

Kentucky


Louisiana

  • Ms. Julie Faucheux, M.S.
    Instructor of Pediatrics, LSUMC
    Genetic Counselor, Children's Hospital
    200 Henry Clay Ave.
    New Orleans, LA 70118
    Phone: 504-896-9254
    Email: [email protected] 

Maine


Maryland


Massachusetts

  • Northeast VCFS Support Group
    Lisa Jennings
    385 North Street
    Weymouth, MA 02191
    Phone: 781-335-6652
    E-mail: [email protected] 

Michigan

  • VCFS Support Group of Michigan
    Fred & Joanne Berg
    12839 Shady Lane
    Sterling Heights, MI 48313
    (810) 731-1086
    Email: [email protected]
    ***Bi-Monthly Meeting (click for info)
     
  • Crystal Avram
    6318  Alcott
    Petersburg, MI  49270
    (517) 447-4018
    Email:  [email protected]

Minnesota:

  • Karen Gruber
    4507 31 Ave., SE
    St. Cloud, MN 56302
    Phone: 320-259-6656
    Email: [email protected] 

  • Twin Cities DiGeorge Syndrome/VCFS Support Group
    Adriane DeMarco
    Minneapolis, MN
    Phone: (612) 626-3478
    Email: [email protected] 


Missouri


Montana

  • Raedene Wipf
    484 Hwy10 E. #1
    Big Timber, MT 59011
    Phone: 406-932-4182
    Email: [email protected] 

Nebraska

  • Nebraska 22q Family Support Group
    Anne Stalker
    815 West Beal Street
    Lincoln, NE 68521
    Phone:  (402) 435-0221
    E-mail:  [email protected]

New Hampshire

  • Northeast VCFS Support Group
    Maureen Anderson
    2 Lansing Drive
    Salem, NH 03079
    Phone: 603-898-6332
    E-mail: [email protected] 

New Jersey


New Mexico

  • Kathy Weed
    9629 Allande Rd. NE
    Albuquergue, NM  87109
    Phone:  505-822-1871
    Email:  [email protected]


New York

  • Sheryl Beck
    Lido Beach, NY  11561
    Phone: 516-432-1251
    Email: [email protected]


  • Pamela J. Coloton

    P.O. Box 725
    Hunter, NY 12442
    Phone: 518-263-4867
    Email:
    [email protected]

  • Trisha Pushee
    37 Hillcrest Drive
    Oswego, New York 13126
    Phone: 315-342-0137
    Email: [email protected] 

North Carolina

  • Elizabeth Arditti
    712 9th St, NW
    Hickory, NC 28601-3530
    Email: [email protected] 

  • Pamela Ward
    Chocowinity, NC 27817
    (eastern side; 20 minutes from Greenville)

    Phone: 252-975-7968
    Email: [email protected] 

Ohio

  • Michelle Stroh
    2561 Wexford Road
    Columbus, OH 43221
    Phone: 614-486-3503
    Email:
    [email protected]
     


Oklahoma

  • Laura Ross
    1312 Cherry Avenue
    Lawton, OK 73507
    Phone: 405-353-6446
    E-mail: [email protected] 

Oregon

  • Kevin and Julie Lorain
    650 16th Ave SE
    Albany, OR  97322
    Phone: (541) 967-4364
    Email: [email protected]

Pennsylvania

  • Terri Horn
    233 Ruby Dr.
    Collegeville, PA  19426
    Phone:  610-454-0767
    Email: [email protected]

     

  • John & Kimberly Sullivan
    619 Churchville Lane
    Holland, PA  18966
    Phone: 215-396-7260
    Email: [email protected]


Rhode Island

  • Joy Chece
    13 Pat Drive
    Lincoln, RI 02865
    Phone: 401-334-4632

South Carolina

  • Pam Holland
    2600 Portrush Dr, Apt
    Spartanburg, SC 29301
    Phone:  864-587-9737
    Email: [email protected] 
     
  • Becky Chambers
    3411 Nesting Lane
    Fort Mill, SC  29708
    Phone: 803-547-0646
    Email: [email protected]

     

  • Michelle Willett
    902 Carriage Hill Rd.
    Simpsonville, SC 29681
    Phone: 864-987-9267
    Email:  [email protected]


South Dakota

  • We're sorry.  No known support groups in South Dakota. 
    If you wish to start or function as a support group in South Dakota, please notify the foundation at:  [email protected]

Texas & Arkansas

  • OKTexArkLana VCF Group
    Suzanne Manthei
    16377 Crockett Crossing
    Conroe, Tx 77306
    Phone: (936)264-4660
    Email: [email protected]
     
  • Keri Alexander
    411 Fall Creek
    Richardson, Texas 75080
    Phone: (972) 889-1103


Utah

  • 22q and "U"tah
    Amy Steadman
    West Jordan, Utah
    Phone: 801-562-0877
    Email: [email protected]

Vermont

  • Northeast VCFS Support Group
    Maureen Anderson
    2 Lansing Drive
    Salem, NH 03079
    Phone: 603-898-6332
    E-mail: [email protected] 

Virginia

  • Northern Virginia/DC Support Group
    Nancy Robbins
    11722 Saddle Crescent Circle
    Oakton, VA 22124
    Phone: 703-620-4178
    Email: [email protected] 

Washington State


Wisconsin


  • If no support group is listed for your state or area, please look to a neighboring state or area for possible assistance.

  • If you would like to be listed as someone who may be contacted regarding VCFS, please email us with the precise contact information which you authorize to be placed on the web site.

  • If you are interested in starting a support group in your area where none currently exists, please contact The Foundation Office and we will provide you with information regarding how start a support group.


Click here for International Support Groups.

Send mail to [email protected] with questions or comments about this web site.
Copyright 2004 Velo-Cardio-Facial Syndrome Educational Foundation, Inc.
Last modified: 02/03/06