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The following support groups have been established to aid parents and family
members in dealing with and learning about the many facets of caring for a
person affected with Velo-Cardio-Facial Syndrome. They are educational and
supportive in nature and are NOT medical service providers, nor do they give
medical advice or opinion. Medical advice should be obtained ONLY from a
competent medical professional. If the coordinator of your support group does
not have knowledge of competent medical professionals in your area who are
familiar with VCFS, please
contact the
Foundation Office and we will attempt to direct you, if possible, to someone
in your area.
Support Group information is updated as often as possible. If you don’t find
your area listed, please contact the
Foundation Office or check again in a few days.
Australia
Argentina
-
Asociación Argentina Familias 22q11.2DS
Mr. Jorge E. Severio, Secretario General
Fundación de Endocrinología Infantil
Gral. Lucio N. Mansilla 2771
Capital Federal (C1425BPE)
Buenos Aires, Argentina
Phone: 54 – 911 – 5001 – 9497 Fax: 54 – 11 – 4371 – 9689
Email:
[email protected]
Web site:
http://www.vcfs.com.ar/
England
-
Julie Squair
The 22q11 Group
c/o 14 Culbertson Lane
MILTON KEYNES
MK13 0LH, United Kingdom
Email: [email protected]
-
Heather and Philip
The 22q11 Group
Website: 22q11 Website
-
Max Appeal!
Lansdowne House
13 Meriden Avenue
Wollaston, Stourbridge
West Midlands, England DY8 4QN
Telephone: +44 1384 821227
Email: [email protected]
Website: www.maxappeal.org.uk
France
- Dominique Pfeiffer
GENERATION 22
24 rue Constant Strohl
F- 67000 Strasbourg
France
tél/fax : ++ 33 3 88 31 81 32
web site :
www.generation22.asso.fr
Israel
Website: http://www.eitan-rd.co.il/
(in Hebrew)
“The Israel Association of Rare Diseases”
Jamaica
-
Carribean Support Group
Yvonne Campbell
Kingston, Jamaica
Phone: 876-944-4546
Email:
[email protected]
Spain
If no support group is listed for your area or region, please look to a
neighboring area, if possible.
If you or your organization would like to be listed as someone who may be
contacted regarding VCFS, please email us
with the precise contact information which you authorize to be placed on the web
site.
Click here for
U.S. Support Groups.
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