The Foundation has a new
Executive Director ! Dr.
Karen J. Golding-Kushner took the reigns at the annual conference, held in
San Deigo, CA, August 1-3, 2003. Expect an introductory message from her…
soon. Congratulations, Dr. Kushner.
Two New Books on VCFS
of Hope: VCFS (Velo-Cardio-Facial Syndrome)“, by Raymond Tanner
From the author:
“The book ‘VCFS Footprints’ of hope is a compilation of stories from families
from Australia, Israel, France, New Zealand, South Africa, United Kingdom and
the USA who tell about their trials and tribulations in bringing up a child with
VCFS. It also describes my life story (aged 54 – diagnosed at 43) and my two
sons – James – deceased – aged 9 days old, died 18 years ago; Andrew – aged 16.
There are also additional information etc. The foreword is written by Dr
Shprintzen Ph.D. Proceeds from the book will go to the VCFSEF Foundation and to
the VCFS Foundation Queensland Inc new VCFS Clinic project. “ The book can
be purchased from the
Australian Online Bookshop web site. It is not currently published in the
GENETIC PIECES: Strategies for Living with VCFS, The Chromosome 22q11
Deletion”, written by Ms. Sherry Gomez of Arizona: A comprehensive HANDBOOK for
Parents, Professionals and Anyone wanting to know about Chromosome 22 Deletion
(22q11) and its dynamics. Publication August 15th; advanced orders being taken
on the web site.
Note: A portion of the proceeds from this book is being donated to the
VCFS Educational Foundation, Inc.
Recent Media Coverage
Radio Interview 11/02/03 on Australian TV with Raymond Tanner, Bob
Shprintzen, Karen Golding-Kushner, Stephen Russell.
New Research Studies
Notice: “The VCFS Educational Foundation encourages research that will
advance our knowledge. We do not sponsor or endorse these research
projects, but post requests for participation from time to time as a service
to those conducting research.”
MRI Study of Brain Development in
Children with VCFS
Future Foundation Conferences
July 2005 – Syracuse, NY
July 2006 – Two conferences are
planned for this year. Tentative locations are Strasbourg, France and
Brisbane, Australia. Dates are not yet established.
July 2007 – Location not
Quotable Quote: “Better keep
yourself clean and bright;
you are the window through which you must see the world.”
George Bernard Shaw