The Velo-Cardio-Facial Syndrome Educational Foundation, Inc. is an organization comprised of both professional and lay people whose purpose is to educate the public, the scientific community, families of individuals with Velo-Cardio-Facial syndrome, and individuals with Velo-Cardio-Facial syndrome (VCF) about this common genetic disorder.
The Foundation will act as an advocate for both patients with VCF and the professional community treating this disorder.
The Foundation will provide a forum for the advancement of knowledge relevant to the diagnosis and treatment of individuals with VCF.
The Foundation will provide a forum for discussion of the problems, treatments, or achievements associated with VCF and its management.
The Foundation is organized divisionally into a number of continental groups, with directors for each part of the world represented on the Foundation’s board. These divisions are:
Asia and Africa
Nagato Natsume, DDS, MedSci, Ph.D.
Australia and New Zealand
Linda Campbell, Ph.D.
Professor Stephan Eliez, MD and Bronwyn Glaser, Ph.D.
Antonio Ysunza, MD, Sc.D.
Doron Gothelf, MD
United States and Canada
Dianne Altuna, MS/CCC-SLP