The Velo-Cardio-Facial Syndrome Educational Foundation, Inc. is an organization comprised of both professional and lay people whose purpose is to educate the public, the scientific community, families of individuals with Velo-Cardio-Facial syndrome, and individuals with Velo-Cardio-Facial syndrome (VCF) about this common genetic disorder.
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The Foundation will act as an advocate for both patients with VCF and the professional community treating this disorder.
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The Foundation will provide a forum for the advancement of knowledge relevant to the diagnosis and treatment of individuals with VCF.
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The Foundation will provide a forum for discussion of the problems, treatments, or achievements associated with VCF and its management.
The Foundation is organized divisionally into a number of continental groups, with directors for each part of the world represented on the Foundation’s board. These divisions are:
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Asia and Africa Nagato Natsume, DDS, MedSci, Ph.D. |
Australia and New Zealand Linda Campbell, Ph.D. |
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Europe Professor Stephan Eliez, MD and Bronwyn Glaser, Ph.D. |
Latin America Antonio Ysunza, MD, Sc.D. |
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Middle East Doron Gothelf, MD |
United States and Canada Dianne Altuna, MS/CCC-SLP
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