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Educational Interventions for Students with Velo Cardio Facial Syndrome (22q11 deletion syndrome) Learn about this important new genetic deletion syndrome!
The live Distance Learning Webcasts have concluded. However,
DVDs from all four webcasts are available
from this link:
or cut and paste the link below into your web browser.
http://www.cutler-landsman.com/
Then, just fill out your information and click on the DVD(s) of your choice. They will be be shipped to you shortly.See other supporting ifnromation below.
What is Velo Cardio Facial Syndrome?
Velo Cardio Facial Syndrome (22q11 deletion syndrome) is second only to Down¹s Syndrome as the most common genetic deletion syndrome. It affects more children (1 in 2,000) than Fragile X, Muscular Dystrophy, Cystic Fibrosis, or Hemophilia. It is estimated that 130,000 individuals have this syndrome in the United States. A child is born with VCFS every three hours. Yet, a great many affected individuals are not readily diagnosed. School personnel are unfamiliar with VCFS and are not trained to work with students who have the syndrome. This webcast is intended for teachers, speech and language therapists, administrators, early childhood educators, OT/PT therapists, parents and anyone else working with special needs students.
Greater than 90% of individuals with VCFS need specialized educational programming. They struggle with cognition, speech and language, fine/gross motor issues and mental health issues. Many will go on to need tailored support as they transition into adulthood. Early intervention and specialized programs can help VCFS individuals lead happier and more productive lives.
Log into http://www.usatoday.com/news/health/2007-06-06-vcfs_n.htm
to read a recent article on the syndrome.
Learn how you can make a difference!
Presenter: Donna Cutler-Landsman
See website at http://www.Cutler-Landsman.com.
Author of new book: Educating Children with Velo Cardio Facial Syndrome available from http://www.PluralPublishing.com .
Ms.Cutler-Landsman is an educator with 30+ years of experience who has spoken internationally on the topic of VCFS and education. She is a past president of the Velo Cardio Facial Educational Foundation and currently is co-regional director for the United States and Canada. She also has a 23 year-old child with the syndrome.
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