Books & Publications | Webcast & DVDs | VCFS Conference Audio Recordings
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Therapy Techniques for Cleft Palate Speech and Related Disorders, A book focusing on the treatment of speech disorders associated with VCFS is available from Amazon and other sources. Authored by Karen J. Golding-Kushner, Ph.D., the volume book is the outcome of a meeting by a consensus panel of the leading experts in treating these disorders. That meeting was supported in part by a grant from the Educational Foundation in response to the recognized need for a book that detailed speech therapy approaches in children with VCFS. There is one entire chapter devoted specifically to VCFS and similar genetic disorders. Available from Amazon for approximately $65.00.
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Footprints of Hope: VCFS (Velo-Cardio-Facial Syndrome)", by Raymond Tanner. From the author: "The book 'VCFS Footprints' of hope is a compilation of stories from families from Australia, Israel, France, New Zealand, South Africa, United Kingdom and the USA who tell about their trials and tribulations in bringing up a child with VCFS. It also describes my life story (aged 54 - diagnosed at 43) and my two sons - James - deceased - aged 9 days old, died 18 years ago; Andrew - aged 16. There are also additional information etc. The foreword is written by Dr Shprintzen Ph.D. Proceeds from the book will go to the VCFSEF Foundation and to the VCFS Foundation Queensland Inc new VCFS Clinic project. " The book can be purchased from the Australian Online Bookshop. Not currently published in the U.S. |
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MISSING GENETIC PIECES: Strategies for Living with VCFS, The Chromosome 22q11 Deletion", written by Ms. Sherry Gomez of Arizona: A comprehensive HANDBOOK for Parents, Professionals and Anyone wanting to know about Chromosome 22 Deletion (22q11) and its dynamics. Note: A portion of the proceeds from this book is being donated to the VCFS Educational Foundation, Inc.
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Practical Handbook for Educating Children with Velo-Cardio-Facial Syndrome and Other Developmental Disabilities by Donna Landsman, the person who has lectured more about education and VCFS than any other person in the world. Available on advance order from Amazon.com for $55.00. |
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Velo-cardio-facial Syndrome: A Model for Understanding Microdeletion Disorders, Edited by Kieran C. Murphy Education and Research Centre, Royal College of Surgeons of Ireland, Peter J. Scambler Institute of Child Health, University College London.
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Velo-Cardio-Facial Syndrome, volume 1 by Robert J. Shprintzen and Karen J. Golding-Kushner (Plural Publishing, 2008)
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Velo-cardio-facial Syndrome volume 2: Treatment of Communication Disorders by Karen J. Golding-Kushner and Robert J. Shprintzen (Plural Publishing, 2011) |
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