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Velo-Cardio-Facial Syndrome
Educational Foundation, Inc.

Non-U.S. Support Groups

 

The following support groups have been established to aid parents and family members in dealing with and learning about the many facets of caring for a person affected with Velo-Cardio-Facial Syndrome. They are educational and supportive in nature and are NOT medical service providers, nor do they give medical advice or opinion. Medical advice should be obtained ONLY from a competent medical professional. If the coordinator of your support group does not have knowledge of competent medical professionals in your area who are familiar with VCFS, please contact the Foundation Office and we will attempt to direct you, if possible, to someone in your area.

Support Group information is updated as often as possible. If you don't find your area listed, please contact the Foundation Office or check again in a few days.

Select a represented country for it's support group information.


Australia


Argentina

  • Asociación Argentina Familias 22q11.2DS
    Mr. Jorge E. Severio, Secretario General
    Fundación de Endocrinología Infantil
    Gral. Lucio N. Mansilla 2771
    Capital Federal (C1425BPE)
    Buenos Aires, Argentina
    Phone: 54 - 911 - 5001 - 9497 Fax: 54 - 11 - 4371 - 9689
    Email:  jeseverio@vcfs.com.ar
    Web site:  http://www.vcfs.com.ar/

Belgium


Canada


England


France

  • Pierre-Jean LEVY
    GENERATION 22
    7 rue Pierre Brossolette
    92600 Asnières
    sur Seine
    France
    Tél: 
    33 (0)1 40 86 39 85
    web site : www.generation22.asso.fr


Israel

Website: http://www.eitan-rd.co.il/ (in Hebrew)
"The Israel Association of Rare Diseases"

Jamaica


Mexico

  • Association 22q11 Mexico
     Valladolid, Yucatan, Mexico.
     email: asociacion@22q11mexico.org
     Phone: (985)8563425

New Zealand

 

Philippines


Spain

  • Inaki Sancho 
    Dr. Maranon 7 3ºC
    20009 San Sebastian (Spain)
    Telephone: Spain +34 43 212524
    Email: isancho@ceit.es


f no support group is listed for your area or region, please look to a neighboring area, if possible.

If you or your organization would like to be listed as someone who may be contacted regarding VCFS, please email us with the precise contact information which you authorize to be placed on the web site.


Click here for U.S. Support Groups

   

Send mail to webmaster@vcfsef.org with questions or comments about this web site.
Copyright © 2004 Velo-Cardio-Facial Syndrome Educational Foundation, Inc.
Last modified: 02/03/06

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