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Velo-Cardio-Facial Syndrome
Educational Foundation, Inc.

U.S. Support Groups

 


VCFSEF Support Groups & Contacts in the
United States

The support groups listed were established to aid parents & family members in learning about and dealing with and the many facets of caring for a person with Velo-Cardio-Facial Syndrome.  The groups are educational and supportive in nature ONLY.   They are NOT medical service providers, nor do they provide medical advice or opinion. Medical advice should be obtained ONLY from a qualified medical professional.

If the support group or person you choose does not have knowledge of qualified medical professionals in your area who are familiar with VCFS, please contact the Foundation Office and we will attempt to assist you. Support Group information is updated regularly. If you do not find a support group near you, please contact the Foundation Office and will try to locate a contact.

States: **
AL  AR  AZ  CA  CO  CT  FL  GA  IA  ID IL IN  KS KY  LA MA  MD  ME  MD  MI  MN  MO  MT  NC  NE  NH  NJ  NM NY  OH  OK  OR  PA  RI  SC  SD  TX  UT  VA  VT  WA  WI

** Not every state is represented.

Alabama
  • Valerie Bonds
    4498 Village Green Drive
    Birmingham, AL 35242
    (205) 991-6744
    Email: ABonds@aol.com

Arizona

  • Jennifer Rockrich
    8821 N. 9th Ave.
    Phoenix, AZ 85021
    602-944-2832 home
    602-908-7100 cell
    JRockrich@msn.com

  • Sherry Gomez
    Glendale, AZ 85306
    (602) 789-6416
    Email: 22q11@cox.net 
California

  • Northern California VCFS Support Group
    Lucy Brock
    Redwood City, CA
    Phone:650-365-8755
    E-mail: klbrock@sbcglobal.net

  • Linda Dempster
    77135 Michigan Drive
    Palm Desert, CA 92201
    Phone 760-772-5556
    Email: lindademptster@aol.com

  • Northern California VCFS Support Group
    Cheryl Fox Dultz
    Kingswood Elementary School
    5700 Primrose Drive
    Citrus Heights, Ca 95610
    Phone: (916) 867-2046
    Email: cafox2@aol.com or cdultz@sanjuan.edu

  • Northern California VCFS Support Group
    Carrie Heran
    Phone: 916-624-1711
    Email: vcfsparent@aol.com

  • Patricia Lindsey
    Chico, California
    Phone: 530-892-8782
    Email: trishlind@netscape.com 

  • Southern California VCFS Support Network
    Pam Hunter
    Email:  mail4mom@san.rr.com
     

Colorado
Connecticut

  • Northeast VCFS Support Group
    Lisa Jennings
    385 North Street
    Weymouth, MA 02191
    Phone: 781-335-6652
    E-mail: lisamjenn@aol.com 

Florida
Georgia

Idaho

Illinois

Indiana

  • We're sorry.  No known support groups in Indiana.
    If you wish to start or function as a support group in Indiana, please notify the foundation at:  kelvin@vcfsef.org

Iowa

  • IOWA VCFS/DIGEORGE SUPPORT GROUP
    Jennifer Kokjohn
    A306 Boone Street
    Boone, IA 50036
    Phone: 515-432-0915
    Email: kokjohn@galynx.com 
     
  • Kerry Schadl
    Dubuque, Iowa
    Email: kschadl@aol.com

Kansas

  • Trisha Slimmer
    5145 NW Arroya Dr.
    Topeka, KS 66618
    Phone: 785-286-3875
    Email: trslimmer@cox.net 

Kentucky

Louisiana

  • Ms. Julie Faucheux, M.S.
    Instructor of Pediatrics, LSUMC
    Genetic Counselor, Children's Hospital
    200 Henry Clay Ave.
    New Orleans, LA 70118
    Phone: 504-896-9254
    Email: jlovel@lsuhsc.edu 

Maine

Maryland

Massachusetts

  • Northeast VCFS Support Group
    Lisa Jennings
    385 North Street
    Weymouth, MA 02191
    Phone: 781-335-6652
    E-mail: lisamjenn@aol.com 

Michigan

  • VCFS Support Group of Michigan
    Fred & Joanne Berg
    12839 Shady Lane
    Sterling Heights, MI 48313
    (586) 731-1086
    Email: mjfberg14@sbcglobal.net
    ***Bi-Monthly Meeting (click for info)
     
  • Crystal Avram
    6318  Alcott
    Petersburg, MI  49270
    (517) 447-4018
    Email:  avram@cass.net

Minnesota:

  • Minnesota VCFS Support Group
    Adriane Baylis
    Minneapolis, MN
    Phone: (612) 626-3478
    Email: TCvcfsgroup@hotmail.com 

Missouri

Montana

  • Raedene Wipf
    484 Hwy10 E. #1
    Big Timber, MT 59011
    Phone: 406-932-4182
    Email: wipf@mcn.net 

Nebraska

  • Nebraska 22q Family Support Group
    Anne Stalker
    815 West Beal Street
    Lincoln, NE 68521
    Phone:  (402) 435-0221
    E-mail:  astalker@neb.rr.com

New Hampshire

  • Northeast VCFS Support Group
    Lisa Jennings
    385 North Street
    Weymouth, MA 02191
    Phone: 781-335-6652
    E-mail: lisamjenn@aol.com 

New Jersey

  • Missy DiSibio
    1 Stafford Way
    Marlton, NJ 08053
    Phone: 856-596-3365
    Email: misdino@aol.com
     

  • NJ VCFS Family Support Group
    Yolanda Ortiz
     Cedar Grove, NJ
    Phone:  973-837-9662
    Email: PaulW28165@aol.com

New Mexico

  • Kathy Weed
    9629 Allande Rd. NE
    Albuquergue, NM  87109
    Phone:  505-822-1871
    Email:  fourweeds@comcast.net

New York

  • Sheryl Beck
    Lido Beach, NY  11561
    Phone: 516-432-1251
    Email: shebeck@aol.com

  • Pamela J. Coloton
    P.O. Box 725
    Hunter, NY 12442
    Phone: 518-263-4867
    Email: pcjeune@aol.com

  • Trisha Pushee
    37 Hillcrest Drive
    Oswego, New York 13126
    Phone: 315-342-0137
    Email: kpthehp@Powerfcu.net 

North Carolina

Ohio

Oklahoma

  • Laura Ross
    1312 Cherry Avenue
    Lawton, OK 73507
    Phone: 405-353-6446
    E-mail: rross27719@aol.com 

Oregon

Pennsylvania

  • Terri Horn
    233 Ruby Dr.
    Collegeville, PA  19426
    Phone:  610-454-0767
    Email: thorn1026@comcast.net

  • Peer Supporter for 22q deletion #
    Tammy RoseCranberry
    Twp., Pennsylvania 16066
    Home: (724)776-0970
    Cell:    (724)622-6096
    Email: Megsmom008@aol.com

  • John & Kimberly Sullivan
    619 Churchville Lane
    Holland, PA  18966
    Phone: 215-396-7260
    Email: sullivan14@comcast.net

Rhode Island

  • Joy Chece
    13 Pat Drive
    Lincoln, RI 02865
    Phone: 401-334-4632

South Carolina

South Dakota

  • We're sorry.  No known support groups in South Dakota. 
    If you wish to start or function as a support group in South Dakota, please notify the foundation at:  kelvin@vcfsef.org

Texas & Arkansas

  • Deborah Clarke Trejo
    Velo-Cardio-Facial Syndrome/22q11 deletion/DiGeorge sequence Austin-area Interest Group
    Austin, Texas
    Phone: 512-909-8359

  • Suzanne Manthei
    Conroe, TX (Houston Area)
    -Basic information only-
    Email: eagle2911@juno.com

  • Dianne Altuna
    Dallas, TX
    866-VCFSEF5
    Email:  PALTUNA@aol.com
     
  • Keri Alexander
    411 Fall Creek
    Richardson, Texas 75080
    Phone: (972) 889-1103

Utah

  • 22q and "U"tah
    Amy Steadman
    West Jordan, Utah
    Phone: 801-562-0877
    Email: ASTEADMAN@utah.gov

Vermont

  • Northeast VCFS Support Group
    Maureen Anderson
    2 Lansing Drive
    Salem, NH 03079
    Phone: 603-898-6332
    E-mail: mladja@aol.com 

Virginia

  • Northern Virginia/DC Support Group
    Nancy Robbins
    11722 Saddle Crescent Circle
    Oakton, VA 22124
    Phone: 703-620-4178
    Email: nirobbins@aol.com 

Washington State

  • VCFS Family Support Network of Washington State

Wisconsin

  • If no support group is listed for your state or area, please look to a neighboring state or area for possible assistance.

  • If you would like to be listed as someone who may be contacted regarding VCFS, please email us with the precise contact information which you authorize to be placed on the web site.

  • If you are interested in starting a support group in your area where none currently exists, please contact The Foundation Office and we will provide you with information regarding how start a support group.

Click here for International Support Groups.

Send mail to webmaster@vcfsef.org with questions or comments about this web site. Copyright © 2004 Velo-Cardio-Facial Syndrome Educational Foundation, Inc.
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