The Moat House Hotel
Silver Street, Northampton NN1 2TA, ENGLAND
July 26-28, 2002
| Friday, 26 July, 2002 Moderator: Susan Marks, M.S., Childrens Hospital of Wisconsin, Milwaukee, WI, USA |
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| 10:00 – 10:30:
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Why do children with VCFS develop so distinctive a pattern of communication? Robert J. Shprintzen, Ph.D., Upstate Medical University, Syracuse, NY, USA
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| 10:30 – 11:00:
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Language Abilities and Brain Function in Children with Velo-Cardio-Facial Syndrome Bronwyn Glaser, B.A.; Shiri Liron, M.D.; Sophie Dahoun, M.D.; Michael Morris, Ph.D.; Stylianos Antonarakis, M.D.; Alan M. Reiss, M.D.; Stephan Eliez, M.D., Geneva University School of Medicine, Geneva, Switzerland |
| 11:00 – 11:15:
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Questions |
| 11:30 – 11:55:
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Evaluating velopharyngeal insufficiency in VCFS: Details, Details, Details! Robert J. Shprintzen, Ph.D., Upstate Medical University, Syracuse, NY, USA |
| 11:55 – 12:00:
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Questions
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| 12:00 – 1:00:
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Lunch (on your own)
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| 1:00 – 2:30: | Speech Therapy in VCFS: Articulation, VPI, Language, and What Not to Do Karen J. Golding-Kushner, Ph.D., Kean University, Union, NJ, USA |
| 2:30 – 3:00: |
Long distance and parental speech therapy in VCFS Natalie Havkin, M.S., Upstate Medical University, Syracuse, NY, USA
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| 3:00 – 3:20: | Questions
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| 3:20- 3:40: | Break |
| 3:40 – 4:00: | Video and Audio Therapy: The Benefits of Recording Therapy Sessions for Home and Clinic Use Anne Harding-Bell, Ph.D., Addenbrookes Hospital, Cambridge, UK |
| 4:00 – 4:15: | Multisensory Input-Modeling to Stimulate Output Processing Anne Harding-Bell, Ph.D. , Addenbrookes Hospital, Cambridge, UK
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| 4:15 – 5:00: | Surgical Management of Velopharyngeal Insufficiency in VCFS: Why It Is Different? Sherard A. Tatum III, M.D., Upstate Medical University, Syracuse, NY, USA
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| 5:00 – 5:10:
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Questions |
| 5:10 – 6:30:
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Business Meeting |
| 6:30
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Annual Dinner |
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| Saturday, 27 July, 2002 Moderator: Donna Landsman, Madison, WI |
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| 9:00 – 10:20: | Brain Imaging in VCFS and the Implications of the Findings Identifying Risk Factors for Psychiatric Disorder in Children with VCFS Stephan Eliez, M.D., Geneva University School of Medicine, Geneva, Switzerland Wendy Kates, Ph.D., Upstate Medical University, Syracuse, NY, USA |
| 10:20 – 11:00: | Cognitive Phenotype of Children with VCFS A. F. Stevens, L.E. Campbell, R. Morris, A. Karmiloff-Smith, E. Simonoff, M.J. Owen, D.G.M. Murphy, Kieran Murphy, Institute of Psychiatry, King’s College, London, UK |
| 11:00 – 11:10: | Questions |
| 11:10 – 11:15: | Break
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| 11:15 – 11:45: | The Neurobiology of Schizophrenia in Adults with VCFS Kieran Murphy, Royal College of Surgeons in Ireland, Dublin, Ireland |
| 11:45 – 12:15: | Psychiatric Illness in VCFS Doron Gothelf, M.D., Tel Aviv, Israel |
| 12:15 – 12:30: | Questions |
| 12:30 – 1:30: | Lunch (on your own) |
| 1:30 – 1:45: | Psychiatric Profile of Children with VCFS: Preliminary Findings A.F. Stevens, L.E. Campbell, R. Morris, A. Karmiloff-Smith, E. Simonoff, M.J. Owen, D.G.M. Murphy, Kieran Murphy, Institute of Psychiatry, King’s College, London, UK |
| 1:45 – 2:10: | Teenagers and Young Adults with Velo-Cardio-Facial Syndrome: What Are the Challenges? Kate Baker and David Skuse, Institute of Child Health, London |
| 2:10 – 2:20: | Children with VCFS: Examining the Relationship Between Visual-Motor Deficits and Internalizing Behavior M. Catherin Freier, Ph.D., Janice Chan, Jamie Pivonka, Vidhya Krishnamurthy, Loma Linda University, Loma Linda, CA, USA Questions |
| 2:30 – 2:50: | Don’t Just Do Something…..Stand There! Treatment of Respiratory Infections in VCFS Anne Marie Higgins, R.N., N.P., Upstate Medical University, Syracuse, NY, USA |
| 2:50 – 3:10: | Antibody Deficiency and Autoimmunity in VCFS A.R. Genery, D. Baye; J.J. O’Sullivan, T. Flood, A.J. Gant; Newcastle General Hospital, Newcastle Upon Tyne, UK |
| 3:10 – 3:25: | Questions |
| 3:25 – 3:45: | Break |
| 3:45 – 4:15: | Leg Pains in VCFS: An Update Ahmad Al-Khattat, Northampton University, Northampton, UK |
| 4:15 – 4:35: | A Velo-Cardio-Facial Syndrome Clinic: Results of a Family Satisfaction Survey Sue Mildenhall, Theresa Wynn, Brian Coghlan; Guy’s Hospital, London, UK |
| 4:35 – 4:50: | Questions |
| 4:50 – 5:15: | The Genetics of VCFS: Of Mice and Men Peter Scambler, M.D., Institute of Child Health, London, UK |
| Sunday, July 28, 2002
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| 9:00 – 9:30: | Feeding Difficulties and Therapy in Children with VCFS Robert Beecher, M.S., Childrens Hospital of Wisconsin, Milwaukee, WI, USA |
| 9:30 – 10:00: | Eating versus Feeding versus Swallowing: Fantasies and Fixes Natalie Havkin, M.S., Upstate Medical University, Syracuse, NY, USA |
| 10:00 – 10:30: | Evaluating Swallowing Disorders in VCFS Robert J. Shprintzen |
| 10:30 – 10:45: | Questions |
| 10:45 – 11:00:
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Break |
| 11:00 – 12:00: | Educational Needs in Children with VCFS Donna Landsman, M.A., Madison, Wisconsin, USA |