The Velo-Cardio-Facial Syndrome Educational Foundation, Inc.
Baltimore, Maryland
July 21-23, 2000
This CME event is also co-sponsored by the Office of Continuing Medical Education, SUNY Upstate Medical University at Syracuse. The State University of New York Upstate Medical University is accredited by the Accreditation Council for Continuing Medical Education (ACCME) to provide continuing medical education for physicians.
The State University of New York Upstate Medical University at Syracuse designates this continuing medical education activity for 13 credit hours in Category 1 of the Physician’s Recognition Award of the American Medical Association. |
Friday, July 21, 2000
12:00 noon: Registration
12:30 P.M.: Introductory remarks; Robert J. Shprintzen, Ph.D., Executive Director; Julie Cooper, R.N., President
1:00 P.M. From 1975 to 2000: What Progress Have We Made in Treating VCFS -From Infancy to Adulthood
Robert J. Shprintzen, Ph.D., Upstate Medical University, Syracuse, NY
1:35 P.M. Questions and Discussion
1:45 P.M. Speech Therapy in VCFS: A Model for Professionals to Follow
Karen J. Golding-Kushner, Ph.D., East Brunswick, NJ.
2:30 P.M. Speech Therapy In VCFS: A Model for Parents to Follow
Natalie Havkin, M.S., Upstate Medical University, Syracuse, NY.
3:00 P.M. Questions and Discussion
3:15 P.M. Coffee
4:05 P.M. Fostering Self Esteem in Children and Conflict Prevention in the Home
Dr. John Walkup, Division of Child and Adolescent Psychiatry, Johns Hopkins
4:35 P.M. Questions and Discussion
4:45 P.M. Multiple Objective Input Therapy: A Model for Addressing Several Aspects of Communicative Behavior
A. Harding-Bell, Addenbrookes Hospital, Cambridge, United Kingdom
5:00 P.M. Business Meeting
6:30 P.M. Annual Dinner
Saturday, July 22, 2000
8:30 A.M. Registration and Continental Breakfast
9:00 A.M. Molecular Genetics: Of Mice and Men
Bernice Morrow, Ph.D., Albert Einstein College of Medicine, Bronx, NY
9:35 A.M. Questions and Discussion
9:45 A.M. Functional Magnetic Resonance Imaging of the Brain in VCFS: An Update.
Stephan Eliez, M.D., Stanford University School of Medicine, Stanford, CA
10:30 A.M. Questions and Discussion
10:45 A.M. Coffee
11:05 A.M. Early Treatment Leading to Medical Dependence: Keeping it Simple
Robert J. Shprintzen, Ph.D., Upstate Medical University, Syracuse, NY
11:35 A.M. Questions and Discussion
11:45 A.M. Planning for the Future of your Special Needs Child
Nadine O. Vogel, MBA, Founder and Director, S.N.A.P. (Special Needs Advocate for Parents)
12:30 P.M. Lunch
2:00 P.M. Psychiatric Manifestations in VCFS
Demitri Papolos, M.D., Albert Einstein Coll. of Medicine, Bronx, NY; Doron Gothelf, M.D., Geha Psychiatric Hospital, Sackler School of Medicine, Tel Aviv, Israel.
3:00 P.M. Panel Discussion and Questions on Psychiatric Manifestations in VCFS
Stephan Eliez, M.D., Stanford University School of Medicine, Stanford, CA; Doron Gothelf, M.D., Geha Psychiatric Hospital, Sackler School of Medicine, Tel Aviv, Israel; Demitri Papolos, M.D., Albert Einstein College of Medicine, Bronx, NY
3:30 P.M. Treating Chronic Leg Pains in VCFS: A 3 Year Follow-up
Ahmad Al-Khattat, Nene College, Northampton, United Kingdom
4:00 P.M. Questions and Discussion
4:15 P.M. Coffee
4:30 P.M. Immune Disorders in VCFS
Coleen Cunningham, M.D., Upstate Medical University, Syracuse, NY
5:10 P.M. Growth Velocity and Adult Height in VCFS
Anne Marie Higgins, N.P., Upstate Medical University, Syracuse, NY
5:20 P.M. Questions and Discussion
Sunday, July 23, 2000
9:00 A.M. Educating the Child and Adolescent with VCFS
Donna Landsman, M.A., Madison, WI
9:40 A.M. Long-term Goals: Planning for the Individual with VCFS after School Age
Panel Session
10:00 A.M. Sharing the Good Times.
Barbara Dandron, Deerfield Beach, Florida
10:10 A.M. Questions and Discussion
10:20 A.M. Coffee
10:30 A.M. Surgery for Speech: Special Considerations and Outcomes in VCFS
Sherard A. Tatum III, M.D., Upstate Medical University, Syracuse, NY
11:00 A.M. What is a Good Outcome for Surgery to Improve Speech?
panel: Karen J. Golding-Kushner, Ph.D., East Brunswick, NJ; Eileen Marrinan, M.S., Boston, MA; Susan Marks, M.S., Children’s Hospital of Wisconsin, Milwaukee, WI; Natalie Havkin, M.S., Upstate Medical University, Syracuse, NY
11:30 A.M. VCFS and Nonverbal Learning Disability: A Not-So-Perfect Fit
Wendy R. Kates, C.P. Burnette, L. Abbott, M.B. Denckla, Kennedy-Krieger Institute and the Johns Hopkins University, Baltimore, MD
12:00 noon Video Tape: A Day in the Life of VCFS, Pam Holland and John Ackourey (20 minutes)
CONCURRENT SESSIONS: The Speech and Leg Pain Clinics will be held at various times throughout the three days of the meeting. There is limited enrollment for these clinics and we would therefore urge preregistration as early as possible. The sibshop and self-esteem workshops will be held on Saturday from 10 A.M. until 2 P.M. There are no charges for these clinics or workshops. Finally, there will be a class on etiquette and social skills following the Saturday workshops for which there will be a minimal charge. If you are interested in the social skills/etiquette class, we will forward additional information.
Speech Clinic
Karen J. Golding-Kushner (New Brunswick, NJ), Natalie Havkin (Syracuse, NY), Susan Marks (Milwaukee, WI), Eileen Marrinan (Boston, MA), Robert J. Shprintzen (Syracuse)
Leg Pain Clinic
Ahmad Al-Khattat (Northampton, UK)
Etiquette Class
Cathy Hanson
Self-Esteem Workshop
Sibshop: A Program for Brothers and Sisters of Children with Special Needs
Addison Beck, Child Life Specialist, Mt. Washington Pediatric Hospital
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Click below for:
- Narrative descriptions of the program.
- Biographical Sketches of Speakers
Detailed agenda follows below.