Other References


Velo-Cardio-Facial Syndrome
Educational Foundation, Inc.

  • Newsletters, Periodic, produced by the Educational Foundation

  • Footprints
    of Hope: VCFS (Velo-Cardio-Facial Syndrome)
    “, by Raymond Tanner
    From the author:
    “The book ‘VCFS Footprints’ of hope is a compilation of stories from
    families from Australia, Israel, France, New Zealand, South Africa, United
    Kingdom and the USA who tell about their trials and tribulations in bringing
    up a child with VCFS. It also describes my life story (aged 54 – diagnosed
    at 43) and my two sons – James – deceased – aged 9 days old, died 18 years
    ago; Andrew – aged 16. There are also additional information etc. The
    foreword is written by Dr Shprintzen Ph.D. Proceeds from the book will go to
    the VCFSEF Foundation and to the VCFS Foundation Queensland Inc new VCFS
    Clinic project. “
     The book can be purchased from the

    Australian Online Bookshop web site
    . It is not currently published in
    the U.S.

    GENETIC PIECES: Strategies for Living with VCFS
    , The Chromosome 22q11
    Deletion”, written by Ms. Sherry Gomez of Arizona: A comprehensive HANDBOOK
    for Parents, Professionals and Anyone wanting to know about Chromosome 22
    Deletion (22q11) and its dynamics. Publication August 15th; advanced orders
    being taken on the
    web site
    . Note: A portion of the proceeds from this book is
    being donated to the VCFS Educational Foundation, Inc.

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Copyright © 2004 Velo-Cardio-Facial Syndrome Educational Foundation, Inc.
Last modified: 09/07/05