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Newsletters, Periodic, produced by the Educational Foundation
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“Footprints
of Hope: VCFS (Velo-Cardio-Facial Syndrome)“, by Raymond Tanner
From the author:
“The book ‘VCFS Footprints’ of hope is a compilation of stories from
families from Australia, Israel, France, New Zealand, South Africa, United
Kingdom and the USA who tell about their trials and tribulations in bringing
up a child with VCFS. It also describes my life story (aged 54 – diagnosed
at 43) and my two sons – James – deceased – aged 9 days old, died 18 years
ago; Andrew – aged 16. There are also additional information etc. The
foreword is written by Dr Shprintzen Ph.D. Proceeds from the book will go to
the VCFSEF Foundation and to the VCFS Foundation Queensland Inc new VCFS
Clinic project. “ The book can be purchased from the
Australian Online Bookshop web site. It is not currently published in
the U.S.
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“MISSING
GENETIC PIECES: Strategies for Living with VCFS, The Chromosome 22q11
Deletion”, written by Ms. Sherry Gomez of Arizona: A comprehensive HANDBOOK
for Parents, Professionals and Anyone wanting to know about Chromosome 22
Deletion (22q11) and its dynamics. Publication August 15th; advanced orders
being taken on the
web site. Note: A portion of the proceeds from this book is
being donated to the VCFS Educational Foundation, Inc.
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