Newsletters


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Velo-Cardio-Facial Syndrome
Educational Foundation, Inc.

Newsletters

This page contains the most recent issues of the VCFSEF
periodic  newsletter. Due to the high costs associated with hard copy distribution —
especially to international addresses — we prefer
electronic distribution whenever possible. 

If you’d like to receive the VCFSEF Newsletter
and/or information updates regarding VCFS, please enter your mail address below
(you’ll be taken to a 2nd page) and complete the form, and you will be notified via email when a new newsletter or other
information is available. (We attempt to publish the
Foundation newsletter quarterly but that isn’t always possible.)

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Current Newsletter:


Previous Newsletters

  • June 2005 (Size 551KB)
    Updates on the 11th Annual meeting in Syracuse, and the Strasbourg and Australia meetings.  Articles on ADDHD, psychiatric risk behaviors, immunologic findings, summary of a new book, and more…

    January 2005 Newsletter!
    Recaps of 2004 Atlanta Conference, article on The Art of
    Negotiating: Dealing with Problem Efficiently!, a touching article by
    VCFS mom Mary McPherson; introduction of your new board members and regional directors, and more. 

    Also translated in Hebrew.



January 2004
Newsletter!

Greetings and farewells from Dr. Kushner and Dr. Shprintzen; summary of the 9th
Annual Meeting in San Diego, *great* article on support groups by Maureen
Anderson, and information on the new structure of The Educational Foundation.
Also translated in Arabic, Hebrew, and Spanish



Preliminary info on the
2003 Conference in San Diego , VCFS success story, 3rd in the 3-part
series on speech problems entitled “Language Impairments and School
Success”,
an article entitled “How Does
Brain Anatomy Affect Learning in Children with VCFS”,
by Wendy Kates,
Ph.D.; “VCFS Meetings
Around the World”, and
more.

Includes information on
2002 annual conference in Northampton ENGLAND. Also contains a VCFS
Mother’s Story on dealing with VCFS, and a companion story by her son, a
college student, discussing his perspective in dealing with VCFS.  Also a
very informative article on addressing speech and languages problems for
VCFS children ages 3 through 6.

Features two articles on child advocacy and education, and the first of
a 3-part series discussing addressing speech language problems in VCFS
children.

Includes information regarding the 2001 VCFSEF Annual Conference
in Deerfield Beach, Fl, and an article on the purpose and mission of the
Educational Foundation.

Includes information regarding the Year 2000 VCFSEF
Conference in Baltimore, Maryland including a “Call for Abstracts” form.
Also contains a summary of the 1999 meeting in Milwaukee. Start of a
“frequently asked questions” column, and a list of the new (and returning)
council members  (Note: To enhance loading speed, this web version does
not incorporate the photos included in the hardcopy version.)

Posted 11/3/99, includes information
regarding the Year 2000 VCFSEF Conference in Baltimore, Maryland including a
“Call for Abstracts” form. Also contains a summary of the 1999 meeting in
Milwaukee. Start of a “frequently asked questions” column, and a list of the
new (and returning) council members  (Note: To enhance loading speed,
this web version does not incorporate the photos included in the hardcopy
version.)

General information regarding upcoming 5th Annual
conference in Milwaukee, WI. Contains a recap of the June 1998 meeting in
Boston and the essence of “The Great Debate: To Sign or Not to Sign.” Pros
and cons of teach VCFS children to use signing as a means of communication.
Also contains an announcement for the 5th Annual Conference in Milwaukee for
1999 (including a call for abstracts), membership/dues forms, order forms
for the tape set from the 1998 Boston conference; minutes from the June
meeting, and various other announcements.

Contains a recap of
the June 1998 meeting in Boston and the essence of “The Great Debate: To
Sign or Not to Sign.” Pros and cons of teach VCFS children to use signing as
a means of communication. Also contains an announcement for the 5th Annual
Conference in Milwaukee for 1999 (including a call for abstracts),
membership/dues forms, order forms for the tape set from the 1998 Boston
conference; minutes from the June meeting, and various other announcements.

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Copyright © 2004 Velo-Cardio-Facial Syndrome Educational Foundation, Inc.
Last modified: 02/03/06