The Foundation

Our Mission

The Velo-Cardio-Facial Syndrome Educational Foundation is an organization
comprised of both professional and lay people whose purpose is to educate the
public, the scientific community, families of individuals with
Velo-Cardio-Facial syndrome, and individuals with Velo-Cardio-Facial syndrome
(VCF) about this common genetic disorder.

  • The Foundation will act as an
    advocate for both patients with VCF and the professional community treating
    this disorder.

  • The Foundation will provide a
    forum for the advancement of knowledge relevant to the diagnosis and
    treatment of individuals with VCF.

  • The Foundation will provide a
    forum for discussion of the problems, treatments, or achievements associated
    with VCF and its management.


The VCFS Educational Foundation consists of over 1300 lay and professional members
worldwide.  Annual dues are used to produce and distribute
literature and educational
information to the membership,including:

  •  a general information
    packet regarding VCFS,
  • a periodic newsletter
  • the official
    Foundation web site, and
  • such other information as determined by the board of
    directors and member council

… as well as directly addressing
queries regarding VCFS.

Membership dues also help fund the
Annual VCFSEF Conference,
which has been held each year since 1994.