|
|
|
VCFSEF Support Groups & Contacts in the United States
The support groups listed were established to aid parents & family members in learning about and dealing with and the many facets of caring for a person with Velo-Cardio-Facial Syndrome. The groups are educational and supportive in nature ONLY. They are NOT medical service providers, nor do they provide medical advice or opinion. Medical advice should be obtained ONLY from a qualified medical professional.
If the support group or person you choose does not have knowledge of qualified medical professionals in your area who are familiar with VCFS, pleasecontact the Foundation Office and we will attempt to assist you. Support Group information is updated regularly. If you do not find a support group near you, pleasecontact the Foundation Office and will try to locate a contact.
** NOT ALL STATES ARE REPRESENTED.
- Valerie Bonds
4498 Village Green Drive
Birmingham, AL 35242
(205) 991-6744
Email: [email protected]
-
Northern California VCFS Support Group
Lucy Brock
Redwood City, CA
Phone:650-365-8755
E-mail: [email protected]
-
Linda Dempster
77135 Michigan Drive
Palm Desert, CA 92201
Phone 760-772-5556
Email: [email protected]
-
Northern California VCFS Support Group
Cheryl Fox Dultz
Kingswood Elementary School
5700 Primrose Drive
Citrus Heights, Ca 95610
Phone: (916) 867-2046
Email: [email protected]
-
Northern California VCFS Support Group
Carrie Heran
Phone: 916-624-1711
Email: [email protected]
-
Patricia Lindsey
Chico, California
Phone: 530-892-8782
Email: [email protected]
-
Southern California VCFS Support Network
Pam Hunter
Email: [email protected]
- We’re sorry. No known support groups in Colorado.
If you wish to start or function as a support group in Oregon, please notify the foundation at: [email protected]
- Northeast VCFS Support Group
Maureen Anderson
(supports Connecticut also)
2 Lansing Drive
Salem, NH 03079
Phone: 603-898-6332
E-mail: [email protected]
-
Christy Felix
220 Pendleton Drive
Athens, GA 30606
Phone: 706-543-3300
Email: [email protected]
-
Karlene Coleman, MN, CGC
Children’s Healthcare of Atlanta
1405 Clifton Road, NE
Atlanta, GA 30322-1101
Phone: 404-325-6641
Email: [email protected]
-
Lorraine Echols-Stewart
1906 Ward Circle #4
East Point, GA 30344-1514
Email: [email protected]
-
Latise Miller
726 Jackson Circle
Powder Springs, GA 30127
Phone: (770) 919-9510
[email protected]
- We’re sorry. No known support groups in Idaho.
If you wish to start or function as a support group in Idaho, please notify the foundation at: [email protected]
- We’re sorry. No known support groups in Indiana.
If you wish to start or function as a support group in Indiana, please notify the foundation at: [email protected]
- IOWA VCFS/DIGEORGE SUPPORT GROUP
Jennifer Kokjohn
A306 Boone Street
Boone, IA 50036
Phone: 515-432-0915
Email: [email protected]
- Kerry Schadl
Dubuque, Iowa
Email: [email protected]
- Trisha Slimmer
5145 NW Arroya Dr.
Topeka, KS 66618
Phone: 785-286-3875
Email: [email protected]
- Ms. Julie Faucheux, M.S.
Instructor of Pediatrics, LSUMC
Genetic Counselor, Children’s Hospital
200 Henry Clay Ave.
New Orleans, LA 70118
Phone: 504-896-9254
Email: [email protected]
- Mid-Atlantic Support Group
Julie Cooper or
Laura Dvornicky
PO Box 14
Stevenson, MD 21153-0014
Phone: (410) 740-3283
Email Julie: [email protected]
Email Laura: [email protected]
- Northeast VCFS Support Group
Lisa Jennings
385 North Street
Weymouth, MA 02191
Phone: 781-335-6652
E-mail: [email protected]
-
Karen Gruber
4507 31 Ave., SE
St. Cloud, MN 56302
Phone: 320-259-6656
Email: [email protected]
-
Twin Cities DiGeorge Syndrome/VCFS Support Group
Adriane DeMarco
Minneapolis, MN
Phone: (612) 626-3478
Email: [email protected]
- Raedene Wipf
484 Hwy10 E. #1
Big Timber, MT 59011
Phone: 406-932-4182
Email: [email protected]
- Nebraska 22q Family Support Group
Anne Stalker
815 West Beal Street
Lincoln, NE 68521
Phone: (402) 435-0221
E-mail: [email protected]
- Northeast VCFS Support Group
Maureen Anderson
2 Lansing Drive
Salem, NH 03079
Phone: 603-898-6332
E-mail: [email protected]
-
Sheryl Beck
Lido Beach, NY 11561
Phone: 516-432-1251
Email:[email protected]
-
Pamela J. Coloton
P.O. Box 725
Hunter, NY 12442
Phone: 518-263-4867
Email: [email protected]
- Trisha Pushee
37 Hillcrest Drive
Oswego, New York 13126
Phone: 315-342-0137
Email: [email protected]
- Laura Ross
1312 Cherry Avenue
Lawton, OK 73507
Phone: 405-353-6446
E-mail: [email protected]
-
Kevin and Julie Lorain
650 16th Ave SE Albany, OR 97322 Phone: (541) 967-4364 Email: [email protected]
-
Terri Horn
233 Ruby Dr.
Collegeville, PA 19426
Phone: 610-454-0767
Email: [email protected]
-
John & Kimberly Sullivan
619 Churchville Lane
Holland, PA 18966
Phone: 215-396-7260
Email: [email protected]
- Joy Chece
13 Pat Drive
Lincoln, RI 02865
Phone: 401-334-4632
- Pam Holland
2600 Portrush Dr, Apt
Spartanburg, SC 29301
Phone: 864-587-9737
Email: [email protected]
-
Becky Chambers
3411 Nesting Lane
Fort Mill, SC 29708
Phone: 803-547-0646
Email: [email protected]
-
Michelle Willett
902 Carriage Hill Rd.
Simpsonville, SC 29681
Phone: 864-987-9267
Email: [email protected]
- We’re sorry. No known support groups in South Dakota.
If you wish to start or function as a support group in South Dakota, please notify the foundation at: [email protected]
Texas & Arkansas
- OKTexArkLana VCF Group
Suzanne Manthei
16377 Crockett Crossing
Conroe, Tx 77306
Phone: (936)264-4660
Email: [email protected]
-
Keri Alexander
411 Fall Creek
Richardson, Texas 75080
Phone: (972) 889-1103
- 22q and “U”tah
Amy Steadman
West Jordan, Utah
Phone: 801-562-0665
Email: [email protected]
- Northeast VCFS Support Group
Maureen Anderson
2 Lansing Drive
Salem, NH 03079
Phone: 603-898-6332
E-mail: [email protected]
- Northern Virginia/DC Support Group
Nancy Robbins
11722 Saddle Crescent Circle
Oakton, VA 22124
Phone: 703-620-4178
Email: [email protected]
-
If no support group is listed for your state or area, please look to a neighboring state or area for possible assistance.
-
If you would like to be listed as someone who may be contacted regarding VCFS, please email us with the precise contact information which you authorize to be placed on the web site.
-
If you are interested in starting a support group in your area where none currently exists, please contact The Foundation Office and we will provide you with information regarding how start a support group.
Click here for International Support Groups.
|
Velo-Cardio-Facial Syndrome Educational Foundation, Inc.