Possible state scholarships!

Once again we are fast approaching another annual conference for VCFS.  It seems like we just bid a jolly farewell to merry Olde England, and we’ll soon be welcoming San Diego as our host for the 9th Annual Conference for the Velo-Cardio- Facial Syndrome Educational Foundation.

If your household is anything like ours, you are thinking about planning your time, and budgets for the trip to the west coast. I would like to share some information with those who may be looking for some financial assistance to ease the cost burden associated with the conference. The information that I have is specific only for the State of Michigan, but I am sure this would be available in all states, at least it will give you a starting point to forward your request within your individual regions.

What I have found is that to help increase your knowledge of your child’s health condition parent scholarships are awarded to conferences related to a child’s diagnosis, condition or treatment. I initially contacted my county Health Department — they also provide Crippled Children’s coverage where some private insurances fall short.  They in turn directed me to The Parent Participation Program, which is a parent, directed program of the Children’s Special Health Care Service Plan, a division of the Michigan Department of Community Health. Generally all that is required is a letter stating what your child’s condition is, basic information about the conference, costs of lodging, air fare, etc. and a copy of the foundation’s newsletter.  I know in Michigan, the earlier you apply the better the chances.

I truly hope that all states have a similar program. If anyone has any questions please do not hesitate to contact me by e-mail [email protected] .  I hope this information is of some use in defraying some of the costs to enable as many as possible to attend this years conference.

Fred Berg
Lay Member Executive Board