International Support Groups

 
International Support Groups

The following support groups have been established to aid parents and family
members in dealing with and learning about the many facets of caring for a
person affected with Velo-Cardio-Facial Syndrome. They are educational and
supportive in nature and are NOT medical service providers, nor do they give
medical advice or opinion. Medical advice should be obtained ONLY from a
competent medical professional. If the coordinator of your support group does
not have knowledge of competent medical professionals in your area who are
familiar with VCFS, please contact the
Foundation Office and we will attempt to direct you, if possible, to someone
in your area.

Support Group information is updated as often as possible. If you don’t find
your area listed, please contact the
Foundation Office or check again in a few days.

Select a represented country for it’s support group information.

• Australia
• Argentina
• Belgium
• Canada
• Denmark
• France

 • Germany
• Ireland
• Israel
• Italy
• Jamaica
• Mexico		 • Netherlands
• New Zealand
• Norway
• Philippines
• Romania
• Spain		 • Sweden
• Switzerland
• United Kingdom

 

Australia

 

Argentina

  • Asociación Argentina Familias 22q11.2DS
    Mr. Jorge E. Severio, Secretario General
    Fundación de Endocrinología Infantil
    Gral. Lucio N. Mansilla 2771
    Capital Federal (C1425BPE)
    Buenos Aires, Argentina
    Phone: 54 – 911 – 5001 – 9497
    Fax: 54 – 11 – 4371 – 9689
    Email:  [email protected]
    Web site:  https://www.vcfs.com.ar/

 

Belgium

 

Canada

 

Denmark

 

France

Germany

 

Ireland

 

Israel

Website: https://www.eitan-rd.co.il/ (in Hebrew)
“The Israel Association of Rare Diseases”

 

Italy

 

Jamaica

  • The Velo-Cardio- Facial Syndrome Education Foundation of Jamaica/ Caribbean
    Yvonne Campbell
    Kingston, Jamaica
    Phone: 1876-4785589
    Email:[email protected]

 

Mexico

 

Netherlands

 

New Zealand

 

Norway

 

Philippines

Romania

 

Spain

 

Sweden

 

Switzerland

 

United Kingdom

  • Max Appeal
    Julie Wootton
    15 Meriden Avenue
    Stourbridge
    West Midlands
    DY8 4QN
    Email: [email protected]

    Claire Hennessey
    Max Appeal
    Coombe Lodge
    Blagdon
    North Somerset
    BS40 7RG
    Tel: +44(0)1761462578
    Email: [email protected]

    Website: www.maxappeal.org.uk
    Helpline: +44 (0) 1384821227
    Tollfree (within UK): 0800 389 1049

 

 

If no support group is listed for your area or region, please look to a
neighboring area, if possible.

If you or your organization would like to be listed as someone who may be
contacted regarding VCFS, please email us with the precise contact information which you authorize to be placed on the web
site.