Continental Europe

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Velo-Cardio-Facial Syndrome
Educational Foundation, Inc.

International Branches: Continental Europe

 


Continental Europe

Regional Director: Stephan Eliez

Belgium:

Relais 22 (French Speaking)
President : Frédérique Bonnewijn
Email: [email protected]
Communication : Isabelle Vanlathem
Email: [email protected]
Avenue des Ortolans
62 – 1170 Brussels – Belgium
Tel : 00.32.473.49.22.11
website : www.relais22.be
email : [email protected]

VECARFA Belgium
(Belgium; Flemish speaking group)
(Details of the Society)
Paul Van Winghem
Email: [email protected]

Website: http://users.pandora.be/vcfs/vecarfa.html

Denmark

Sarah Demerbes, President
22q11 Foreningen Danmark

Rathsacksvej 29
1862 Frederiksberg C
Denmark
Phone: 45 35386803

Email: [email protected] or [email protected]
Website: www.22q11.dk

France:

Frédérique DeClercq & Pierre-Jaen Levy
GENERATION 22

24 rue Constant Strohl
F- 67000 Strasbourg
France
tél/fax : ++ 33 3 88 31 81 32
Email:  [email protected]
W
eb site : www.generation22.asso.fr

Italy:

Giulietta Cafiero
Italy –
AIdel22
c/o ICBD Via Carlo Mirabello,19 -00195 Rome
tel/fax: +39 06 37514488
Mobile: +39 348 6715251
web site: www.aidel22.it
E-mail: [email protected]

Netherlands:

Mieke van Leeuwen
Federatie van Ouderverenigingen
(Dutch Parents Organisations)

P.O.Box 85276
3508 AG Utrecht, The Netherlands
Tel.: +31-30-2363767
E-mail: [email protected]
 
Frits A.Beemer, M.D.,PhD
Specialty: clinical genetics/pediatrics
Dept.of Medical Genetics
Mail nr.KC 04.084.2
University Medical Center Utrecht
P.O.Box 85090
3508 AB Utrecht, The Netherlands

Tel.: +31-30-2503810
E mail: [email protected]

Norway:

Parental representative:
Morten Fornebo

Telephone  +47 66 75 99 62  (home)
Telephone  +47 98 28 10 15  (office)
e-mail: [email protected]

Professional representative:
Sissel Iversen

Telephone  +47 51 58 57 65  (home)
Telephone  +47 51 59 92 66  (office)
e-mail:  [email protected]   (office)
e-mail:  [email protected]  (home)

Sweden:

RoseMarie Larsson
(Details of the Society)
Nordgårdsvägen 17, 430 90
Öckerö, Sweden, +46 31 968334

Email:  [email protected]
Website: http://www.catch22.nu

Switzerland:
Barbara Gremaud
(Details of Society)
17, ch. Passoret, 1234 Vessy
Geneva, Switzerland
Phone +4122 890 03 11,
Email: [email protected]

Web site: Connect22