VCFSEF Newsletters



Velo-Cardio-Facial
Syndrome
Educational Foundation,

Incorporated


2004 VCFSEF
Combined Conference
July 23-25, 2004
Atlanta, GA



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VCFSEF Quarterly Newsletters

This page contains the most recent issues of the VCFSEF newsletter. Due to cost restraints associated with distributing a paper newsletter — especially to international addresses — we favor electronic distribution, if possible.

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We attempt to publish the Foundation newsletter quarterly; however, events do not always allow it. These newsletters may be copied and / or distributed at will, provided no data contained therein is changed in anyway. Thank you for your assistance.

Kelvin P. Ringold

  • January 2004 Newsletter!
    Greetings and farewells from Dr. Kushner and Dr. Shprintzen; summary of the 9th Annual Meeting in San Diego, *great* article on support groups by Maureen Anderson, and information on the new structure of The Educational Foundation.

    Previous Newsletters

  • December 2002 Newsletter!
    Preliminary info on the 2003 Conference in San Diego , VCFS success story, 3rd in the 3-part series on speech problems entitled “Language Impairments and School Success”, an article entitled “How Does Brain Anatomy Affect Learning in Children with VCFS”, by Wendy Kates, Ph.D.; “VCFS Meetings Around the World”, and more. . .

  • Includes information on 2002 annual conference in Northampton ENGLAND. Also contains a VCFS Mother’s Story on dealing with VCFS, and a companion story by her son, a college student, discussing his perspective in dealing with VCFS.  Also a very informative article on addressing speech and languages problems for VCFS children ages 3 through 6.

  • May 2001- Features two articles on child advocacy and educatioin, and the first of a 3-part series discussing addressing speech language problems in VCFS children.

  • December 2000 – , includes information regarding the 2001 VCFSEF Annual Conference in Deerfield Beach, Fl, and an article on the purpose and mission of the Educational Foundation.

  • April 2000 Newsletter, includes information regarding the Year 2000 VCFSEF Conference in Baltimore, Maryland including a “Call for Abstracts” form. Also contains a summary of the 1999 meeting in Milwaukee. Start of a “frequently asked questions” column, and a list of the new (and returning) council members  (Note: To enhance loading speed, this web version does not incorporate the photos included in the hardcopy version.)

  • November 1999 Newsletter Posted 11/3/99, includes information regarding the Year 2000 VCFSEF Conference in Baltimore, Maryland including a “Call for Abstracts” form. Also contains a summary of the 1999 meeting in Milwaukee. Start of a “frequently asked questions” column, and a list of the new (and returning) council members  (Note: To enhance loading speed, this web version does not incorporate the photos included in the hardcopy version.)

  • May 1999 Newsletter   General information regarding upcoming 5th Annual conference in Milwaukee, WI. Contains a recap of the June 1998 meeting in Boston and the essence of “The Great Debate: To Sign or Not to Sign.” Pros and cons of teach VCFS children to use signing as a means of communication. Also contains an announcement for the 5th Annual Conference in Milwaukee for 1999 (including a call for abstracts), membership/dues forms, order forms for the tape set from the 1998 Boston conference; minutes from the June meeting, and various other announcements.

  • November 1998
    Newsletter       Contains a recap of the June 1998 meeting in Boston and the essence of “The Great Debate: To Sign or Not to Sign.” Pros and cons of teach VCFS children to use signing as a means of communication. Also contains an announcement for the 5th Annual Conference in Milwaukee for 1999 (including a call for abstracts), membership/dues forms, order forms for the tape set from the 1998 Boston conference; minutes from the June meeting, and various other announcements.

  • Page 12 of the November ’98 newsletter, with a few photos from the June Conference.

  • April 1998
    Newsletter       Contains the following articles: Genetic Counseling and VCFS: A Basic Review, VCFS and Prenatal Diagnosis, The Name Game (A discussion of syndromes vs sequence, including Shprintzen syndrome and Di George Sequence); various announcement including new supports groups.

  • December 1997
    Newsletter       Contains announcement(s) regarding the fourth annual meeting, note from the President, note from the Editor, support group information (not alphabetized), a list of 1997 VCFS Related publications, Report on the 1997 Annual Meeting of the American Society of
    Human Genetics, minutes from the 3rd annual meeting.

  • The Name Game;   Stand-alone article, published in the April 1998 newsletter. Easily readable, printable and and downloadable, without the rest of the newsletter. Also in Abobe Reader format.

 
     

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