VCFSEF – Mission Statement

Educational Foundation,


Combined Conference

July 23-25, 2004
Atlanta, GA

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Mission Statement:

The Velo-Cardio-Facial Syndrome Educational Foundation (The Foundation)
is an organization comprised of both professional and lay people whose purpose
is to educate the public, the scientific community, families of individuals
with velo-cardio-facial syndrome, and individuals with velo-cardio-facial
syndrome (VCF) about this common genetic disorder.

    • The Foundation will act as an advocate for both patients with VCF and
      the professional community treating this disorder.

    • The Foundation will provide a forum for the advancement of knowledge
      relevant to the diagnosis and treatment of individuals with VCF.

    • The Foundation will provide a forum for discussion of the problems,
      treatments, or achievements associated with VCF and its management.


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