U.S. VCFS Support Group & Contacts



Velo-Cardio-Facial
Syndrome
Educational Foundation,

Incorporated



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This site maintained by:
Kelvin P. Ringold

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VCFSEF Support Groups & Contacts
in the United States

(Last Update:  February 19, 2004)
The support groups listed were established to aid parents & family members in learning
about and dealing with and the many facets of caring for a person with Velo-Cardio-Facial Syndrome.  The groups are educational and
supportive in nature ONLY.   They are NOT medical service providers, nor do they provide medical advice or opinion. Medical
advice should be obtained ONLY from a qualified medical professional.

If the support group or person you choose does not have knowledge of qualified medical professionals in your area who are familiar with VCFS, please contact the Foundation Office and we will attempt to assist you. Support Group information is updated regularly. If you do not find a support group near you, please contact the Foundation Office and will try to locate a contact.

States: **
AL AZ CA CO CT FL GA IA ID IN KS KY LA MD MA ME MN MO MT NC NE NH NJ NY OH OK OR RI SC SD TX UT VA VT WA WI


** NOT ALL STATES ARE REPRESENTED.

Alabama

  • Valerie Bonds

    4498 Village Green Drive

    Birmingham, AL 35242

    (205) 991-6744

    Email:

Arizona

California

  • Jani Ayers
    6820 Linda Road
    Eureka, CA 95503
    Phone: 707-444-9014

  • Fiona Blasius  (updated 4/6/01)
    1341 Hull Drive
    San Carlos, CA 94070
    Email:

  • The Northern California VCF Support Group Network

    Ken & Lucy Brock(updated 6/6/01)

    426 Upton Street

    Redwood City, CA 94062-2940

    Phone:650-365-8755

    E-mail:   (updated 6/6/01)

    . . .OR

  • Cheryl Fox Dultz
    Kingswood Elementary School
    5700 Primrose Drive
    Citrus Heights, Ca 95610
    Phone: (916) 867-2046
    Email: cafox2aol.com

  • Patricia Lindsey
    Chico, California
    Phone: 530-892-8782
    Email:

  • Carrie Heran

    PO Box 2101

    Rocklin, CA 95677-2101

    Phone: 916-624-1711
    Email:

  • Linda Dempster ( updated 3/30/01 )

    77135 Michigan Drive
    Palm Desert, CA 92211-7916
    Phone 760-772-5556

    Email:

  • Julie Thornberry
    4175 Ladd Street
    San Diego, CA 90248
    Phone: 858-273-5134
    E-mail:

Colorado

  • Shelly Czopek

    Rocky Mountain Region

    1880 Eldorado Circle

    Superior, CO 80027

    (303) 494-8071

    Email:

Connecticut

  • Northeast VCFS Support Group

    Maureen Anderson
    2 Lansing Drive
    Salem, NH 03079
    Phone: 603-898-6332
    E-mail:

Florida

  • Barbara Dandron

    613 NW 43 Way

    Deerfield Beach, FL 33442

    Phone: 954-418-0188
    Email:

  • Donna Leffler

    8261 N Justin Road

    Jacksonville, FL 32210
    Email:

  • Cynthia Leehe Dessert
    657 Heatherbrite Circle
    Apopka, FL 32712 ( near Orlando )
    Phone: 407-889-0228
    Email:

  • Barb Southwick
    780 Grand Rapids Blvd
    Naples, FL 34120
    Phone: 239-304-4491
    Email:

Georgia

  • Christy Felix
    220 Pendleton Drive
    Athens, GA 30606
    Phone: 706-543-3300
    Email:

    Karlene Coleman, MN, CGC
    Children’s Healthcare of Atlanta
    1405 Clifton Road, NE
    Atlanta, GA 30322-1101
    Phone: 404-325-6641
    Email:

Idaho

  • Kim Cooper
    PO Box 639
    Plummer, ID 83851
    Phone: 208-686-7046
    Email:

Indiana & Kentucky

  • Ohio Valley / Tri-State VCFS Support Group

    (Ohio, Indiana and Kentucky)

    Teresa Paul

    9327 Bluewing Terrace

    Cincinnati, OH 45236

    Phone: 513-793-3750

    E-mail:

Iowa

Kansas

  • Trisha Slimmer
    5145 NW Arroya Dr.
    Topeka, KS 66618
    Phone: 785-286-3875
    Email:

Louisiana

  • Ms. Julie Faucheux, M.S.
    Instructor of Pediatrics, LSUMC
    Genetic Counselor, Children’s Hospital
    200 Henry Clay Ave.
    New Orleans, LA 70118
    Phone: 504-896-9254
    Email:

Maine

  • Northeast VCFS Support Group

    Maureen Anderson
    2 Lansing Drive
    Salem, NH 03079
    Phone: 603-898-6332
    E-mail:

Maryland

  • Mid-Atlantic Support Group

    Julie Cooper or

    Laura Dvornicky
    PO Box 14

    Stevenson, MD 21153-0014

    Phone: (410) 740-3283 (updated 6/6/02)

    Email: net
    Email: (for Laura Dvornicky)

Massachusetts

  • Northeast VCFS Support Group

    Lisa Jennings

    385 North Street

    Weymouth, MA 02191

    Phone: 781-335-6652

    E-mail:

Minnesota

Missouri

  • Sharon Astwood

    17343 Hilltop Ridge Drive

    Eureka, MO 63025

    Phone: 314-938-7004

    Email:

Montana

  • Raedene Wipf
    484 Hwy10 E. #1
    Big Timber, MT 59011
    Phone: 406-932-4182
    Email:

Nebraska

  • Nebraska 22q Family Support Group

    Anne Stalker

    815 West Beal Street
    Lincoln, NE 68521
    Phone:  (402) 435-0221

    E-mail: 

New Hampshire

  • Northeast VCFS Support Group

    Maureen Anderson

    2 Lansing Drive
    Salem, NH 03079

    Phone: 603-898-6332

    E-mail:

New Jersey

New York

  • Pamela J. Coloton
    P.O. Box 725
    Hunter, NY 12442
    Phone: 518-263-4867
    Email:

  • Trisha Pushee
    37 Hillcrest Drive
    Oswego, New York 13126
    Phone: 315-342-0137
    Email:

North Carolina

  • Elizabeth Arditti
    712 9th St, NW
    Hickory, NC 28601-3530
    Email:

  • Pamela Ward
    Chocowinity, NC 27817 (eastern side; 20 minutes from Greenville)
    Phone: 252-975-7968
    Email:

Ohio

  • Ohio Valley / Tri-State VCFS Support Group

    Teresa Paul

    9327 Bluewing Terrace

    Cincinnati, OH 45236

    Phone: 513-793-3750

    E-mail:

  • Michelle Stroh

    2561 Wexford Road

    Columbus, OH 43221

    Phone: 614-486-3503

  • Pam Barnard

    1194 E 351 Street

    Eastlake, OH 44095

    Phone: 216-951-7441

  • Melissa Parcell
    1284 Tidewater Dr.
    Milford, OH 45150
    Phone: 513-575-3708
    E-mail:

Oklahoma

  • Laura Ross

    1312 Cherry Avenue

    Lawton, OK 73507

    Phone: 405-353-6446

    E-mail:

Oregon

Rhode Island

  • Northeast VCFS Support Group

    Maureen Anderson

    2 Lansing Drive
    Salem, NH 03079

    Phone: 603-898-6332

    E-mail:

  • Joy Chece

    13 Pat Drive

    Lincoln, RI 02865

    Phone: 401-334-4632

South Carolina

  • Pam Holland
    1062 Laurel Glen Circle, Apt. 17
    Spartanburg, SC 29301
    Phone:  (864) 587-9737
    Email:

South Dakota

  • Frances Picotte

    13654 Busted Five Ln

    Rapid City, SD 57702

    Phone: 605-399-3856
    Email:

Texas

  • OKTexArkLana VCF Group

    Suzanne Manthei

    16377 Crockett Crossing

    Conroe, Tx 77306

    Phone: (936)264-4660

Utah

  • 22q and “U”tah
    Amy Steadman
    West Jordan, Utah
    Phone: 801-530-6705 (work) — or — 801-562-0665 (home)
    Email:

Vermont

  • Northeast VCFS Support Group
    Maureen Anderson
    2 Lansing Drive
    Salem, NH 03079
    Phone: 603-898-6332
    E-mail:

Virginia

  • Northern Virginia/DC Support Group

    Nancy Robbins
    11722 Saddle Crescent Circle
    Oakton, VA 22124
    Phone: 703-620-4178
    Email:

Washington State

  • VCFS Family Support Network of Washington State

    Website: VCFS/DiGeorge Family Support Network of Washington

  • Polly Parson ()
    206-523-0142 (Seattle, WA)

  • Lane Richards ()
    360-452-1786 (Port Angeles, WA)

  • Linda King
    509-874-2921 (Yakima, WA)

  • Bob & Nickki Woods ()
    509-326-5458 (Spokane, WA)

  • Dan and Mary Driscoll
    253-863-1547 (Tacoma, WA)

  • Ericka Rud ()
    907-225-9259 (Ketchikan, AK)

Wisconsin

  • If no support group is listed for your state or area, please look to a neighboring state or area for possible assistance.
  • If you would like to be listed as someone who may be contacted regarding VCFS, please email us with the precise contact information which you authorize to be placed on the web site.
  • If you are interested in starting a support group in your area where none currently exists, please contact The Foundation Office and we will provide you with information regarding how start a support group.

Click here for International Support Groups.